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Cancer Advisor
July 31, 2019
Displaying 1 - 20 of 22
  • Navigating finances – using insurance during cancer

    If you’re facing cancer, navigating insurance entitlements might not be on your radar. We’ve found some resources that could help you understand the various insurance entitlements out there and how you can access them. Have we missed something? If there is a finance question you need answered, please don’t hesitate to let us know and we will do what we can to answer it for you. Cancer Advisor has a range of resources on finances and cancer, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Children’s hospitals in Australia

    Children’s hospitals (also known as paediatric hospitals) specialise in the medical needs of children and teenagers. At children’s hospital the staff are specifically trained in taking care of children and teenagers. Chances are there will also be more child-geared activities on hand such as kids films and child entertainers. Expand the boxes below to learn more about children’s hospitals in each state. Some children’s hospitals do not treat children’s cancer, so you may need to move to a different state for treatment. Cancer Advisor has a range of resources for families who need to do this, including personal stories from […]

  • Nutrition tips for children during cancer treatment

    You’re probably aware that nutrition plays a huge part in a child’s overall health and wellbeing at any stage of their lives. However, did you know that nutrition may also help your child to better tolerate their cancer treatment, fight infection and assist with their recovery? Here’s what the experts have to say about the best way to approach nutrition during a child’s cancer treatment. Also, please go easy on yourself and remember that it’s okay to be flexible and cut corners while your child is in hospital. It won’t cause any harm if you serve Weet-bix for dinner or […]

  • Looking after yourself while caring for your child

    Paediatric Palliative Care offers tip on looking after yourself when you are caring for a child with a life-limiting illness. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for.

  • What to pack for the hospital

    Hannah was diagnosed with acute lymphoblastic leukaemia when she was in the eighth grade. In her YouTube video channel (USA) Even More Mermaids Get Leukemia, Hannah and her mum share what to pack for hospital. A few of the items they suggest include: a blanket, face mask, room freshener, throw up bags and slippers with a grip. Please note: Some content contains references to medical treatment; these shouldn’t be considered medical advice. Always speak with a health professional about medical decisions.   Cancer Advisor has a range of resources on hospital information, but we’re always looking for more content. Leave a comment below, share your […]

  • Mouth care

    Looking after your mouth is important, especially when you have cancer. This article from Cancer Research UK covers some common mouth problems and how to cope with them. Mouth care is needed during cancer treatment, if you’re at risk of infections, and if you’re not eating and drinking normally. Proper mouth care will keep your mouth very clean and moist. Common complaints of mouth problems from people with cancer are: Dry mouth Bad breath Changes to taste Mouth sores and infection The article has more information about each of these problems, as well as how to prevent or treat them. […]

  • CancerAid – a free app for cancer management

    CancerAid is a free app where you can find personalised cancer information. You can also store your medical records, results and specialist’s details in a single location. The app is available on iTunes and Google Play. In this demo video, you can see how CancerAid works to empower cancer patients and those who care for them. Diagnosis in particular can be a difficult time for many patients and their family. It is common to experience feelings of isolation and overwhelm at this time. By keeping all your cancer information in one place, CancerAid can help you feel more in control of your […]

  • Mindfulness and meditation apps – A review

    A mum, who is also an Occupational Therapist, has put together this list of 5 mindfulness and meditation apps she has been using and shares her thoughts on them, including the pros and cons of each one. Hopefully this list acts as a helpful guide when choosing mindfulness or meditation tools for yourself or your child. Please note: A fee may be incurred to access some of these apps. Cancer Advisor has a range of resources on mindfulness, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • “To the mom whose child just received a cancer diagnosis”

    To the mom whose child just received a cancer diagnosis is a heartfelt letter published on The Mighty. This insightful piece was written by Pauline Grady, whose son Sam is about to end his cancer treatment who says she is feeling lost. “I started thinking about the different emotions I’ve felt since the beginning,” she explains. “How lost I was at the beginning, how I felt I’d found a side of myself I never knew existed and how I’m now feeling lost again. Lost, found, lost.” Pauline begins her letter “Dear New Cancer Mom” as she reaches out to all the mothers […]

  • Grandparents, Aunties, Uncles, Friends – Your support is invaluable

    Some parents have suggested that rather than just saying ‘If there’s anything I can do, let me know’, it’s more useful to think about what would truly be helpful and do it. Some great ideas include: cooking meals that can be frozen and bringing them to the hospital or home so a healthy meal is always available offering to spend time with the child so both parents can go out together and have a break doing laundry during hospital stays helping with home and garden upkeep while the family are away in hospital accompanying parents on clinic days as they […]

  • Seeking support – What other parents say

    Asking for help can be hard. However, speaking with your social worker, friends and family may be useful in helping you find the support you need. Here, some parents share their insights into asking for and accessing support. ‘Don’t be afraid to ask for help as everyone will want to do something. Get them to cook, take your other children out, do grocery shopping, run errands. You just can’t do it ALL, as much as you want to.’ ‘Support services are available, and often invaluable. Do not be embarrassed to use them. I always felt like they were for “someone […]

  • Making your hospital stay more comfortable

    Having to stay in hospital can bring about different challenges. Parents have shared some tips to help you feel more comfortable and to seek support you might need. ‘Make yourself as comfortable as possible in the room. We had our own doona, pillow etc in the end and in hindsight, we should have bought it in much earlier.’ ‘If your child is under five, ask to speak with an occupational therapist regarding a central line protective vest. They help protect the central line from exposure to infection as well as deterring your child from pulling it out and damaging it.’ […]

  • Advocating for your child – What other parents say

    Being an advocate for your child can be a hard role to navigate. Some parents have shared their experiences with being their child’s advocate and why it’s so important: ‘You are your child’s advocate. Although you may initially feel you don’t want to be “that annoying parent”, sometimes you need to be. It’s often more important to speak up when you feel something is not right, and speak up again and again if you’re not heard the first, second, third time.’ ‘You need to be an advocate for your child at all times in the hospital. If it doesn’t feel […]

  • Tips to help your child on treatment

    It can be hard to support your child while they are receiving treatment and they may be scared or overwhelmed. Some parents have shared their tips to help you support your child when they are receiving treatment: ‘Seek out play therapists, comfort first technicians. Do what you can to find “better”, less traumatic ways for your child to have procedures.’ ‘During chemo or after chemo bring a special soft toy or blanket that your child is familiar with.’ ‘Use distraction techniques when accessing port i.e. using the iPad, reading etc.’ ‘Make admissions seem as everyday as possible to help reduce […]

  • Finance tips from parents of kids with cancer

    Cancer Advisor asked parents to share their top financial tips for getting through their child’s cancer diagnosis and treatment. If you can add something to the list please share it in the comments below to help other families seeking advice. Tip One – Be informed Parent A: “Access financial services – know exactly what is available and how to access it.” Parent B: “Seek financial advice. The loss of income is a big burden and can be very stressful.” Cancer Advisor has over 50 different content pieces on finance including budgeting, accessing your superannuation and what Centrelink benefits you can […]

  • Simple tips to stay organised while on treatment

    Parents have shared some practical tips to help you stay organised while your child is on treatment: ‘Always keep a bag packed and ready for both you and your child for unexpected hospital stays. A couple of changes of clothes, basic toiletries, snacks, a water bottle and a phone charger are all essential items when you are stuck in emergency and waiting for a bed on the ward. Also for parents, it’s handy to keep a spare pillow and blanket in the car too as emergency can have very limited resources on offer for parents.’ ‘Have a list of therapists/clinicians for the […]

  • Keeping track of your travel for treatment

    Parents have shared this tip to help manage the difficulties of tracking patient travel: Keep photocopies of all the paperwork you have submitted along with the date it was submitted. This might make it easier to keep track of. What other tips do you have for keeping on top of patient travel? Share them in the comments below.

  • Tips for good communication

    Parents have shared their top tips to help you communicate with your family and your child’s treatment team. ‘Learn to communicate with your partner during hospital visits when the other parent is not there. Communication is  extremely important’ ‘Be honest with your child at their age level. Answer their questions honestly’ ‘Don’t be worried about asking too many questions because the medical staff know what is happening and what is to be expected, but unless you ask, no question is too big or too small’ ‘Talk with your partner and make time for each other. The kind of stress this puts on relationships is enormous.’ ‘Don’t think too far ahead. Digest […]

  • Parents tips for self-care during childhood cancer

    Parents have shared their top tips for looking after yourself when your child has been diagnosed with cancer. ‘Don’t bottle up emotions. Showers are great places to release pent up emotions.’ ‘Take care of yourself. It’s easy to only think of your sick child, but you must care for your own health.’ ‘Eat healthy along the way.’ ‘For Dads: Don’t be afraid to show emotion; you don’t always have to be the tough one. It will come at once if you bottle it up and that is not good for you, your child or your family.’ ‘Try not to bottle everything up inside as a parent. […]

  • Tips for maintaining sibling relationships during cancer treatment

    “When a child or young person is diagnosed with cancer the whole family is affected by the diagnosis. Siblings are a huge part of a family dynamic yet are often the last ones to be supported or heard.” – In this article Sasha, Redkite Social Worker recommends the benefits of face-to-face counselling “I was so intent with all the treatment I forgot to allow him to “live” with cancer instead of just surviving. Try to remember about other siblings and make the time for them. It is easy to be so absorbed in the cancer circle that sometimes everyone else is unintentionally forgotten.” – Parent of an […]

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