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    Lumber puncture and bone marrow aspirate

    The Hush Foundation and the Royal Children’s Hospital in Melbourne has produced a 12-minute video for children undergoing procedures such as lumber puncture and bone marrow aspirate. The video covers: Feeling worried; What are procedures such as lumber puncture and bone marrow aspirate; How to get ready for these procedures; Going under anaesthetic; and Waking up after the procedure. Cancer Advisor has a range of resources for parents of children with cancer, but we are always looking for more content. Register now to contribute content, recommend a resource, or share your personal story.

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    Adult hospitals and treatment centres in Australia

    When it comes to hospital and treatment centres, teenagers and young people facing cancer have a unique set of needs. Where a young person is treated will most likely depend on their age. If you’re a young adult, you’ll go to an adult hospital. However, teenagers can be sent to either a children’s hospital or an adult facility. What hospital you go to may also depend on where you live or even what type of cancer you have. Not all hospitals offer cancer treatment, so you may have to travel, especially if you live in a regional or rural area. Some Read more [...]

  • Children’s hospitals in Australia

    Children’s hospitals (also known as paediatric hospitals) specialise in the medical needs of children and teenagers. At children’s hospital the staff are specifically trained in taking care of children and teenagers. Chances are there will also be more child-geared activities on hand such as kids films and child entertainers. Expand the boxes below to learn more about children’s hospitals in each state. Some children’s hospitals do not treat children’s cancer, so you may need to move to a different state for treatment. Cancer Advisor has a range of resources for families who need to do this, including personal stories from Read more [...]

  • ONTrac at Peter Mac

    The ONTrac at Peter Mac Cancer Service is located at Peter MacCallum Cancer Centre in Victoria, Australia. Their multidisciplinary team of health professionals works together to ensure that young people are supported before, during and after their cancer treatment. This web page includes information on clinical services for young people like: diagnosis and disease management, palliative and survivorship care, general adolescent health, emotional and mental health concerns, fertility and sexual health, physical and nutritional wellbeing, school and vocation support, and family-focused treatments. The service also provides : Secondary consultation service, Professional development, education and training, research and data collection program, Read more [...]

  • Rare Cancers Australia – KnowledgeBase Patient Support Program

    Rare Cancers Australia has developed the KnowledgeBase as a part of their Patient Support Program aimed at providing patients with a centre of knowledge, guidance, advice and hope. The web page includes a wide range of resources including directories for: Cancer Types Cancer Services Health Professionals Support Services Clinical Trials  Childhood cancers are, by definition, rare or less common (RLC) cancers. There are over 200 different types of RLC cancers, so navigating services and treatment can be difficult for patients and their families. Cancer Advisor has a range of resources on rare cancers, but we’re always looking for more content. Leave Read more [...]

  • Children’s painful procedures and operations factsheet

    The Sydney Children’s Hospital Network has created a factsheet offering tips and advice on children’s painful procedures and operations. As a parent you know your child best, and can therefore greatly assist staff in helping your child cope with the procedure or surgery. Be honest and calm when informing your child about the procedure and answering his/her questions. Decide on which coping strategies you and your child think would be most helpful. It is generally helpful for a child to have a parent present during a painful procedure and/or when your child wakes up after surgery. If you feel unable Read more [...]

  • What adult cancer care can learn from paediatrics

    The American Society of Clinical Oncology (ASCO) has published a PDF on what adult cancer care can learn from paediatrics. They write: “Cancer care varies in its service quality, whether the patients are adults or children. However, pediatric cancer centers follow three core principles that enhance their patients’ overall care experience. This article distills those principles, with the aim of helping adult cancer centers learn from what pediatric centers do well.” The three core principles are: Embrace play Tailor the communication Focus on families, not just patients Cancer Advisor has a range of resources for young people with cancer, but Read more [...]

  • When to call the hospital

    As a parent of a child with cancer you might be wondering when to call the hospital. The Paediatric Integrated Cancer Service (PICS) has put together a handy one-page factsheet that you can print out and put on your fridge. Cancer Advisor has a range of resources with tips and hints, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Cancer – WTF? (Want the facts?)

    UK cancer charity CLIC Sargent has developed this information booklet called Cancer – Want the Facts? This booklet offers guidance and advice for teenagers and young adults who have just been given a cancer diagnosis. Please note, some information will be targeted at a UK audience. Hearing you have cancer throws you into a world of “unknowns”. It’s like finding yourself in the middle of a maze with no clue how you’re supposed to find your way back out again. It’s confusing and scary when you don’t know which way to turn. But that’s where we all step in – your loved Read more [...]

  • Children’s Cancer Foundation

    The Children’s Cancer Foundation has supported children with cancer since 1992. We fund clinical research, clinical care and provide family support to ensure the highest standards of diagnosis, treatment and support for both child and family. While our focus is largely research based, we believe that it is the little things – a child’s access to art and music therapy – that can significantly help a child on their cancer journey. We strive for better and less harmful treatments and believe that every child should laugh, dance, play and live as only a child can. Family Connect The Children’s Cancer Foundation Read more [...]

  • A glossary of terms relating to childhood cancer

    Cancer Australia has published a glossary of terms relating to children’s cancer. Receiving a cancer diagnosis can also mean being exposed to a huge range of new words, terms and phrases. It can help you when dealing with medial professionals to be on top of what all these terms mean. The government website Cancer Australia has created a list of over 1,000 terms listed in alphabetical order. They received this information from Cancer Help UK – the patient information website of Cancer Research UK. We’ve included some of the more common ones below, but it’s worthwhile clicking through to read the rest Read more [...]

  • What not to give your oncologist for Christmas

    In this SoundCloud podcast Doctor Geoff McCowage, a Paediatric Oncologist and Senior Staff Specialist at The Children’s Hospital at Westmead, talks about the people who deserve a Christmas present more than the oncologist. Cancer Advisor has a range of resources on hospital information, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.