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Cancer Advisor
July 31, 2019
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Bereavement
  • Danielle’s story: One day at a time

    They say that our first love will stay in our hearts forever. This couldn’t be more true for 26-year Danielle Paparone. At 19 she was swept off her feet by an affable young man with striking blue eyes. After a blissful year together, he was diagnosed with a brain tumour. However, treatment was unsuccessful, and he died three years after diagnosis. Danielle shares her incredible love story with Cancer Advisor and tells us how she turns her pain into purpose. “He had very big blue eyes and that’s what drew me in,” Danielle says. Jake first laid his big blue […]

  • What to say to your friend who has just been bereaved

    This blog post on Let’s Talk About Loss discusses what to say to your friend who has just been bereaved. The author of the blog is Beth Rowland whose mother died when she was 20. However, the practical advice in this post is also relevant for people hoping to support and communicate with a bereaved parent. Beth says, “I’ve experienced my fair share of people ‘putting their foot in it’ and saying the wrong thing, so I’m going to attempt to pass on a few pearls of wisdom about what to say – and what not to say – when the […]

  • Caring for a son with cancer

    This New York Times documentary follows the story of Regina Hensley and her son Andrew as he fights an aggressive form of cancer, Ewing’s Sarcoma. For years, Regina Hensley struggled with addiction, even once attempting suicide. When her son Andrew was born, he gave her a reason to live. But when he received his diagnosis at 13 years old, Regina had to search for meaning once again. ‘Without Andrew, I can’t imagine what life would be about.’ -Regina Hensley In response to the documentary, the Times received almost 100 responses from parents who were caring for a sick child. Cancer Advisor […]

  • Rare Cancers Australia – KnowledgeBase Patient Support Program

    Rare Cancers Australia has developed the KnowledgeBase as a part of their Patient Support Program aimed at providing patients with a centre of knowledge, guidance, advice and hope. The web page includes a wide range of resources including directories for: Cancer Types Cancer Services Health Professionals Support Services Clinical Trials  Childhood cancers are, by definition, rare or less common (RLC) cancers. There are over 200 different types of RLC cancers, so navigating services and treatment can be difficult for patients and their families. Cancer Advisor has a range of resources on rare cancers, but we’re always looking for more content. Leave […]

  • Bereavement and grief

    Bereavement is the loss of someone through death, and grief is our response to loss. The grief that follows a young person’s death lasts a lifetime, and losing a child to cancer is one of the most devastating things that can happen to any family. When your child dies is a booklet from Redkite that uses the real experiences of bereaved parents to help other parents and carers following the death of their child.  It is important to remember that grief is personal and unique – everybody grieves differently and that’s okay. There will be a number of different factors that will […]

  • “Death doesn’t have to mean failure” – Sacha’s story

    The Guardian in the UK has published Sacha’s story about her son’s end-of-life experience. David, known as DD, was diagnosed with medulloblastoma – a brain tumour – at aged 11. He died five years later. Sacha has since written a book, Follow the Child to help other parents struggling to come to terms with the death of their child. “I consulted four other sets of parents who were passionate about improving end-of-life care,” she explains. “We have laughed and cried and then needed the reassurance of experienced social workers, palliative nurse and paediatric palliative consultants to check our efforts. I only regret that […]

  • Feel the Magic – helping kids deal with grief

    Feel the Magic provides grief education and support to bereaved children and their families. They hope to help alleviate the pain and isolation felt by the death of a loved one including siblings of children and young people who have died of cancer. Their biggest program is Camp Magic – Australia’s largest and leading grief education and support program for bereaved children and teenagers between the ages of 7-17. Camp Magic is held over a three-day weekend during the NSW school holidays. Currently there are four camps held each year in the months of April, July, October and December. It is supported and […]

  • Living without your child: for parents and carers

    Living without your child is a nine-page booklet written using the real experiences of bereaved parents about life after your child dies. It was adapted from CLIC Sargent by Redkite. This booklet is a part of a series which also includes When your child isn’t going to get better and When your child dies. The booklet has sections including: Understanding your grief Dealing with other people Supporting your other children Family and friends Your child’s personal belongings Your child’s room Will I ever be happy again? Cancer Advisor has a range of resources on end of life, but we’re always looking for more content. Leave a […]

  • The Value of Community During Cancer

    Below is a blog post on The Value of Community During Cancer. This article first appeared on www.YouCan.org and was contributed by Anastasia who lost her sister to cancer. Chrisy is my dear sister who was diagnosed at the age of 17 in 2010 with rhabdomyosarcoma (a very very rare type of cancer). At the time of her diagnosis she was in year 12 and I was in year 10. As we were both young, it was very hard to comprehend what cancer is and how fast it could ruin the human body. Slowly we started to learn everything from the moment […]

  • By My Side: Stories from parents whose child has died from cancer

    By My Side: Stories from parents whose child has died from cancer is both a book and short video created for bereaved parents. You can order the book free of charge by calling (1800 733 548) or emailing support@redkite.org.au. By My Side – the book This book of quotes was produced by Redkite in partnership with Dr Leigh Donovan – a clinician, researcher and advocate in paediatric palliative care and loss, grief and bereavement. Over 100 parents participated in a research study (2012-2016) where they generously shared the story of their child’s cancer experience, end of life and family’s journey into bereavement. The quotes and […]

  • Siblings and grief

    Paediatric Palliative Care provide helpful information to help you navigate siblings and grief. It breaks it down by ages including teenagers and primary-school children. It also offers useful resources and books. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for.

  • Selecting a Funeral Director for your child

    Paediatric Palliative Care gives advice to those who are selecting a Funeral Director. It includes a detailed list of questions that will help you find the right funeral director. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for.

  • Teachers support when a student has died

    Teachers support when a student has died is very important for both the child’s family and the broader school community. Paediatric Palliative Care offers information to support teachers whose student, or a student’s sibling, has died including: sharing the news common grief responses memory-making and funerals when to seek help Cancer Advisor has a range of resources on end of life and bereavement, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Bereavement and Cancer – Grandparent grief

    The NSW Paediatric Palliative Care Programme share information on grandparent grief. The webpage also features a 40-minute video that interviews two grandparents who have been grieving for their grandchild. Before you go Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for.

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