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Cancer Advisor
July 31, 2019
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End of life
  • Danielle’s story: One day at a time

    They say that our first love will stay in our hearts forever. This couldn’t be more true for 26-year Danielle Paparone. At 19 she was swept off her feet by an affable young man with striking blue eyes. After a blissful year together, he was diagnosed with a brain tumour. However, treatment was unsuccessful, and he died three years after diagnosis. Danielle shares her incredible love story with Cancer Advisor and tells us how she turns her pain into purpose. “He had very big blue eyes and that’s what drew me in,” Danielle says. Jake first laid his big blue […]

  • Bereavement and grief

    Bereavement is the loss of someone through death, and grief is our response to loss. The grief that follows a young person’s death lasts a lifetime, and losing a child to cancer is one of the most devastating things that can happen to any family. When your child dies is a booklet from Redkite that uses the real experiences of bereaved parents to help other parents and carers following the death of their child.  It is important to remember that grief is personal and unique – everybody grieves differently and that’s okay. There will be a number of different factors that will […]

  • “Death doesn’t have to mean failure” – Sacha’s story

    The Guardian in the UK has published Sacha’s story about her son’s end-of-life experience. David, known as DD, was diagnosed with medulloblastoma – a brain tumour – at aged 11. He died five years later. Sacha has since written a book, Follow the Child to help other parents struggling to come to terms with the death of their child. “I consulted four other sets of parents who were passionate about improving end-of-life care,” she explains. “We have laughed and cried and then needed the reassurance of experienced social workers, palliative nurse and paediatric palliative consultants to check our efforts. I only regret that […]

  • If treatment doesn’t work for your cancer

    If treatment doesn’t work is a Redkite information sheet about what happens if your cancer is not curable. It includes topics such as managing emotion, avoidance and distraction, hope and making choices. Being told that your cancer is not curable and facing the idea of dying is the hardest news most people can imagine hearing. Please know that the Redkite support team are here for you and those close to you at this time. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need […]

  • When your child isn’t going to get better: for parents and carers

    When your child isn’t going to get better is a booklet from Redkite that uses the real experiences of parents who are told that their child will die from cancer. This resource is adapted from the publication “One day at a time: When your child dies”, produced by CLIC Sargent, the UK’s leading cancer charity for children and young people, and their families. This booklet is a part of the One day at a time series which also includes Living without your child and When your child dies There may come a time when you are told that your child isn’t […]

  • End of life care

    Overview of the decisions you might need to make at the end of your child’s life, including palliative care, where you would prefer them to die and planning their funeral, from Redkite.

  • End of life care

    Overview of the practical decisions you might need to make at end of life, including palliative care, where you would prefer to die and advanced care planning, from Redkite.


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