Search Results

Cancer Advisor
July 31, 2019
Displaying 1 - 20 of 35
Filter Selections:
End of life
  • Danielle’s story: One day at a time

    They say that our first love will stay in our hearts forever. This couldn’t be more true for 26-year Danielle Paparone. At 19 she was swept off her feet by an affable young man with striking blue eyes. After a blissful year together, he was diagnosed with a brain tumour. However, treatment was unsuccessful, and he died three years after diagnosis. Danielle shares her incredible love story with Cancer Advisor and tells us how she turns her pain into purpose. “He had very big blue eyes and that’s what drew me in,” Danielle says. Jake first laid his big blue […]

  • Caring for a son with cancer

    This New York Times documentary follows the story of Regina Hensley and her son Andrew as he fights an aggressive form of cancer, Ewing’s Sarcoma. For years, Regina Hensley struggled with addiction, even once attempting suicide. When her son Andrew was born, he gave her a reason to live. But when he received his diagnosis at 13 years old, Regina had to search for meaning once again. ‘Without Andrew, I can’t imagine what life would be about.’ -Regina Hensley In response to the documentary, the Times received almost 100 responses from parents who were caring for a sick child. Cancer Advisor […]

  • Transport and accommodation assistance NSW

    The Isolated Patients Travel and Accommodation Assistance Scheme (IPTAAS) is a NSW Government initiative.  Designed to help isolated patients, IPTAAS offer financial assistance towards transport and accommodation costs.  This is for patients who need to travel long distances for specialist medical treatment that is not available locally. To be eligible to claim through IPTAAS you must meet the following criteria: Be a resident of NSW or Lord Howe Island Hold a Medicare card Live more than 100km from the nearest treating specialist or your combined trips to and from the specialist exceeds 200km/week Specialist treatment not available locally Ineligible for any other […]

  • Rare Cancers Australia – KnowledgeBase Patient Support Program

    Rare Cancers Australia has developed the KnowledgeBase as a part of their Patient Support Program aimed at providing patients with a centre of knowledge, guidance, advice and hope. The web page includes a wide range of resources including directories for: Cancer Types Cancer Services Health Professionals Support Services Clinical Trials  Childhood cancers are, by definition, rare or less common (RLC) cancers. There are over 200 different types of RLC cancers, so navigating services and treatment can be difficult for patients and their families. Cancer Advisor has a range of resources on rare cancers, but we’re always looking for more content. Leave […]

  • Bereavement and grief

    Bereavement is the loss of someone through death, and grief is our response to loss. The grief that follows a young person’s death lasts a lifetime, and losing a child to cancer is one of the most devastating things that can happen to any family. When your child dies is a booklet from Redkite that uses the real experiences of bereaved parents to help other parents and carers following the death of their child.  It is important to remember that grief is personal and unique – everybody grieves differently and that’s okay. There will be a number of different factors that will […]

  • “Death doesn’t have to mean failure” – Sacha’s story

    The Guardian in the UK has published Sacha’s story about her son’s end-of-life experience. David, known as DD, was diagnosed with medulloblastoma – a brain tumour – at aged 11. He died five years later. Sacha has since written a book, Follow the Child to help other parents struggling to come to terms with the death of their child. “I consulted four other sets of parents who were passionate about improving end-of-life care,” she explains. “We have laughed and cried and then needed the reassurance of experienced social workers, palliative nurse and paediatric palliative consultants to check our efforts. I only regret that […]

  • Navigating end of life: Australian laws

    End of life law in Australia  is a guide created by Queensland University of Technology (QUT). It provides accurate, reliable information to help  people navigate end of life issues. There are sometimes that can arise with the end of life decision-making. This is a broad introduction to end of life laws in each Australian State and Territory to help you know the law, and your rights and duties, which includes sections like: Recent Developments Legal Overview Advance Directives Stopping Treatment Palliative Care Organ Donation Euthanasia and Assisted Dying Research Projects Publications and Presentations   “As Australia’s population rapidly ages, legal and ethical issues […]

  • Understanding palliative care for people with cancer

    The Cancer Council and Palliative Care Australia have created a 56-page online PDF called Understanding Palliative Care, a guide for people with cancer, their friends and family. It including types of treatment and how to seek support if needed. Cancer Advisor has a range of resources on end of life, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Hearts for Eva – Sharleigh’s story

    ABC online has published a 6-min documentary and personal story by bereaved mother Sharleigh Stevenson about her daughter Eva. This touching video also features comments by Gerald Purchase, a clinical psychologist as well as footage and interviews with Eva herself. At four-years-old Eva was diagnosed with rhabdomyosarcoma. Sharleigh was told there was no cure. They lived in Victorian regional town called Sunraysia. A local man called John Burfitt held a fundraiser called “Hearts for Eva” to raise money for Eva’s cancer treatment. Hearts for Eva became a global phenomenon. Cancer Advisor has a range of resources on end of life, but we’re […]

  • If treatment doesn’t work for your cancer

    If treatment doesn’t work is a Redkite information sheet about what happens if your cancer is not curable. It includes topics such as managing emotion, avoidance and distraction, hope and making choices. Being told that your cancer is not curable and facing the idea of dying is the hardest news most people can imagine hearing. Please know that the Redkite support team are here for you and those close to you at this time. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need […]

  • The Value of Community During Cancer

    Below is a blog post on The Value of Community During Cancer. This article first appeared on www.YouCan.org and was contributed by Anastasia who lost her sister to cancer. Chrisy is my dear sister who was diagnosed at the age of 17 in 2010 with rhabdomyosarcoma (a very very rare type of cancer). At the time of her diagnosis she was in year 12 and I was in year 10. As we were both young, it was very hard to comprehend what cancer is and how fast it could ruin the human body. Slowly we started to learn everything from the moment […]

  • What to do if your child dies at home

    What should you do if your child dies at home after they have been in your care? Paediatric Palliative Care offers practical and useful advice. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for.

  • Siblings and grief

    Paediatric Palliative Care provide helpful information to help you navigate siblings and grief. It breaks it down by ages including teenagers and primary-school children. It also offers useful resources and books. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for.

  • Selecting a Funeral Director for your child

    Paediatric Palliative Care gives advice to those who are selecting a Funeral Director. It includes a detailed list of questions that will help you find the right funeral director. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for.

  • Where will my child receive care during palliative care?

    This factsheet from Paediatric Palliative Care provides an overview of the care options when your child is in palliative care. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for.

  • Spiritual, religious and cultural wishes during palliative care

    Spiritual, religious and cultural values should be respected during palliative care. This factsheet from Paediatric Palliative Care provides information on how you can talk to your care team about your spiritual, religious or cultural wishes. It also talks about what services might be available to you in hospital. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re […]

Comments

Comments will appear below.