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Cancer Advisor
July 31, 2019
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Palliative care
  • Cancer vs VR

    US startup OnComfort is using virtual reality tools to reduce anxiety in cancer patients. Their apps have been shown to reduce stress, anxiety, and even the need for pain medication. The five apps use a variety of techniques to achieve this, you can learn more via these links: Aqua – an immersive experience that reduces pain and anxiety by inducing relaxation in an undersea environment AMO – an experience that uses clinical hypnosis techniques to ease pain and anxiety while a patient undergoes a short invasive procedure KIMO – for use in paediatrics, KIMO distracts and empowers patients by enabling them to fight […]

  • Caring for a son with cancer

    This New York Times documentary follows the story of Regina Hensley and her son Andrew as he fights an aggressive form of cancer, Ewing’s Sarcoma. For years, Regina Hensley struggled with addiction, even once attempting suicide. When her son Andrew was born, he gave her a reason to live. But when he received his diagnosis at 13 years old, Regina had to search for meaning once again. ‘Without Andrew, I can’t imagine what life would be about.’ -Regina Hensley In response to the documentary, the Times received almost 100 responses from parents who were caring for a sick child. Cancer Advisor […]

  • Transport and accommodation assistance NSW

    The Isolated Patients Travel and Accommodation Assistance Scheme (IPTAAS) is a NSW Government initiative.  Designed to help isolated patients, IPTAAS offer financial assistance towards transport and accommodation costs.  This is for patients who need to travel long distances for specialist medical treatment that is not available locally. To be eligible to claim through IPTAAS you must meet the following criteria: Be a resident of NSW or Lord Howe Island Hold a Medicare card Live more than 100km from the nearest treating specialist or your combined trips to and from the specialist exceeds 200km/week Specialist treatment not available locally Ineligible for any other […]

  • Rare Cancers Australia – KnowledgeBase Patient Support Program

    Rare Cancers Australia has developed the KnowledgeBase as a part of their Patient Support Program aimed at providing patients with a centre of knowledge, guidance, advice and hope. The web page includes a wide range of resources including directories for: Cancer Types Cancer Services Health Professionals Support Services Clinical Trials  Childhood cancers are, by definition, rare or less common (RLC) cancers. There are over 200 different types of RLC cancers, so navigating services and treatment can be difficult for patients and their families. Cancer Advisor has a range of resources on rare cancers, but we’re always looking for more content. Leave […]

  • Bereavement and grief

    Bereavement is the loss of someone through death, and grief is our response to loss. The grief that follows a young person’s death lasts a lifetime, and losing a child to cancer is one of the most devastating things that can happen to any family. When your child dies is a booklet from Redkite that uses the real experiences of bereaved parents to help other parents and carers following the death of their child.  It is important to remember that grief is personal and unique – everybody grieves differently and that’s okay. There will be a number of different factors that will […]

  • Navigating end of life: Australian laws

    End of life law in Australia  is a guide created by Queensland University of Technology (QUT). It provides accurate, reliable information to help  people navigate end of life issues. There are sometimes that can arise with the end of life decision-making. This is a broad introduction to end of life laws in each Australian State and Territory to help you know the law, and your rights and duties, which includes sections like: Recent Developments Legal Overview Advance Directives Stopping Treatment Palliative Care Organ Donation Euthanasia and Assisted Dying Research Projects Publications and Presentations   “As Australia’s population rapidly ages, legal and ethical issues […]

  • Understanding palliative care for people with cancer

    The Cancer Council and Palliative Care Australia have created a 56-page online PDF called Understanding Palliative Care, a guide for people with cancer, their friends and family. It including types of treatment and how to seek support if needed. Cancer Advisor has a range of resources on end of life, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • If treatment doesn’t work for your cancer

    If treatment doesn’t work is a Redkite information sheet about what happens if your cancer is not curable. It includes topics such as managing emotion, avoidance and distraction, hope and making choices. Being told that your cancer is not curable and facing the idea of dying is the hardest news most people can imagine hearing. Please know that the Redkite support team are here for you and those close to you at this time. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need […]

  • 7 resources for relationship wellbeing for young people

    ­­Valentine’s Day is almost here, which means it’s hard to escape the roses and hearts all over social media, and shop windows. If you’re dealing with cancer right now, romance may not be top of your agenda. However, love and sex are important parts of life, and there are ways to keep the spark alive through tough times. Whether you’re a young adult thinking about starting a sexual relationship or a teenager whose partner has a diagnosis, we’ve found a range of resources to help keep your intimate and romantic relationships in good shape. 1 Title: A Guide to Supporting […]

  • Looking after yourself while caring for your child

    Paediatric Palliative Care offers tip on looking after yourself when you are caring for a child with a life-limiting illness. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for.

  • Paediatric care team contact list

    Paediatric Palliative Care have a care team contact list. This template allows you to record the main and alternative care team contacts so you have these on hand when you need them any time of the day. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for.

  • Where will my child receive care during palliative care?

    This factsheet from Paediatric Palliative Care provides an overview of the care options when your child is in palliative care. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for.

  • Spiritual, religious and cultural wishes during palliative care

    Spiritual, religious and cultural values should be respected during palliative care. This factsheet from Paediatric Palliative Care provides information on how you can talk to your care team about your spiritual, religious or cultural wishes. It also talks about what services might be available to you in hospital. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re […]

  • Palliative care and decision making

    Decision making about your child’s treatment while in palliative care can be overwhelming. Also, starting the conversation can be difficult. This factsheet on decision making from the Paediatric Palliative Care answers some questions you might have about making treatment decisions and what the process might involve. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for.

  • Supporting your partner when your child has a life-limiting illness

    Supporting your partner when your child has a life-limiting illness is mostly unspoken territory. That doesn’t mean that relationship wellbeing shouldn’t be prioritised. This factsheet from Paediatric Palliative Care discusses how a child’s life-limiting illness might impact relationships. It also offers strategies to manage various issues including anger, unmet expectations and intimacy. Further Reading Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering, please let us know on our Feedback and Contact page. We want to help you find what you’re […]

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