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Cancer Advisor
July 31, 2019
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Survivorship
  • Ben’s story: ‘Cancer has taught me a lot’

    Diagnosis & treatment After having a sore on his neck for a few weeks Ben decided to make an appointment with his local GP in Perth. Although Ben was more preoccupied about the sore, after hearing about Ben’s history of headaches the doctor insisted on getting tests done. A few weeks later, the 23-year-old was told he had a benign brain tumour and needed surgery. However, after testing the biopsy the tumour turned out to be a malignant four centimetre mass. It was classified as stage 2 with characteristics of stage 3 astrocytoma glioma. The mass was on the right […]

  • Cognitive difficulties after brain cancer

    The Conversation outlines the ways that cancer in a child’s brain has the potential to impact their overall future health and cause long-term disturbances to the central nervous system of survivors.intro Known as ‘late effects’, these cognition and communication difficulties can affect personal and social development. Early intervention can lessen the impact of such difficulties on survivors.   Cancer Advisor has a range of resources on brain cancer and late effects, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.  

  • Cancer survivor and amputee’s cute Halloween costume

    The Mighty has shared a very cute story: titled 3-Year-Old Cancer Survivor Proves You Don’t Need Two Arms to Enjoy Halloween. The article is about Scarlette, a three-year-old amputee and cancer survivor. Scarlette and her mother Simone found a fun and creative way to celebrate Halloween. Simone says, “When she was born, which was four weeks early, her left arm was gigantic … It was about three times the size of her right arm. They had no idea what to make of it.” After many tests, Scarlette was diagnosed with undifferentiated high-grade spindle cell sarcoma, a rare type of cancer. “We did a […]

  • Angus’ story: Being a transgender childhood cancer survivor

    On the New Zealand website, Stuff, a transgender cancer survivor shares his story of his upcoming mastectomy. Angus Coleman was diagnosed with Langerhans Cell Histiocytosis (LCH) at just 16 months old. LCH is a rare type of cancer that can damage tissue or cause lesions to form in one or more places in the body. During his time with cancer, Angus had ongoing treatment from an endocrinologist which is now helping him take his next steps in his gender transition. “I was actually set up with an endocrinologist back when I was diagnosed with langerhans cell histiocytosis  [rare cancer]which is actually the doctor you need […]

  • Teen Girl Living With Cancer – Ellie’s Story

    Teen Girl Living with Cancer is a personal blog by childhood cancer advocate, Ellie. You can also follow her on YouTube, Instagram and Facebook. At 14 years old Ellie was diagnosed with a rare childhood cancer called Alveolar Rhabdomyosarcoma. “It totally flipped my life upside down but now I can use all the horrible experiences I had to inspire and advise you guys.” At the time of writing, her Instagram and Facebook pages were the most up-to-date. On her instagram she says: NED since 22/01/16. I’m in remission. Before you go … If you’ve been affected by childhood or young adult cancer, […]

  • Getting back to “normal” after cancer treatment

    Redkite discusses life after cancer treatment including what your new routine might be and late effects. Before you go … Cancer Advisor would love you to share your insights and knowledge. Your story could help other people facing cancer, and make them feel less alone. Join the Cancer Advisor community and register now.

  • CancerAid – a free app for cancer management

    CancerAid is a free app where you can find personalised cancer information. You can also store your medical records, results and specialist’s details in a single location. The app is available on iTunes and Google Play. In this demo video, you can see how CancerAid works to empower cancer patients and those who care for them. Diagnosis in particular can be a difficult time for many patients and their family. It is common to experience feelings of isolation and overwhelm at this time. By keeping all your cancer information in one place, CancerAid can help you feel more in control of your […]

  • Burkitt’s lymphoma at 15 — Cameron’s story

    Redkite and jimmyteens.tv have created a video interview with 20-year-old Cameron who has been in remission from Burkitt’s lymphoma for the last five years. Cameron was diagnosed at 15. For two weeks he was feeling unwell with headaches, nausea, cold sweats and weight gain before he went to the doctor. “The doctor said my white cell count was pretty horrible,” he says in the video. He went to his local hospital in Redlands. “They had a fair idea it was leukaemia but they wouldn’t tell me at first, they thought I would have a bad reaction to it.” After going […]

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