Search Results

Cancer Advisor
July 31, 2019
Displaying 1 - 20 of 37
Filter Selections:
Personal Stories
  • Ben’s story: ‘Cancer has taught me a lot’

    Diagnosis & treatment After having a sore on his neck for a few weeks Ben decided to make an appointment with his local GP in Perth. Although Ben was more preoccupied about the sore, after hearing about Ben’s history of headaches the doctor insisted on getting tests done. A few weeks later, the 23-year-old was told he had a benign brain tumour and needed surgery. However, after testing the biopsy the tumour turned out to be a malignant four centimetre mass. It was classified as stage 2 with characteristics of stage 3 astrocytoma glioma. The mass was on the right […]

  • Danielle’s story: One day at a time

    They say that our first love will stay in our hearts forever. This couldn’t be more true for 26-year Danielle Paparone. At 19 she was swept off her feet by an affable young man with striking blue eyes. After a blissful year together, he was diagnosed with a brain tumour. However, treatment was unsuccessful, and he died three years after diagnosis. Danielle shares her incredible love story with Cancer Advisor and tells us how she turns her pain into purpose. “He had very big blue eyes and that’s what drew me in,” Danielle says. Jake first laid his big blue […]

  • Cancer survivor and amputee’s cute Halloween costume

    The Mighty has shared a very cute story: titled 3-Year-Old Cancer Survivor Proves You Don’t Need Two Arms to Enjoy Halloween. The article is about Scarlette, a three-year-old amputee and cancer survivor. Scarlette and her mother Simone found a fun and creative way to celebrate Halloween. Simone says, “When she was born, which was four weeks early, her left arm was gigantic … It was about three times the size of her right arm. They had no idea what to make of it.” After many tests, Scarlette was diagnosed with undifferentiated high-grade spindle cell sarcoma, a rare type of cancer. “We did a […]

  • Tosh’s story: how he helped end his daughter’s cancer

    After more than two years of chemotherapy, Tosh Nagashima helped end his daughter’s cancer. Cancer Advisor called him to talk about his family’s experience. In March 2014 four-year-old Bella was diagnosed with high-risk Acute Lymphoblastic Leukaemia (ALL). After arriving at the Royal Children’s Hospital in Melbourne in an ambulance, Bella started chemotherapy immediately. During treatment, Bella’s father continued to work full-time and take care of their youngest daughter Olivia while his wife Vanie spent day and night in the hospital. “After work I would visit Bella in the hospital every day,” he explains. “It was hard for her younger sister […]

  • Angus’ story: Being a transgender childhood cancer survivor

    On the New Zealand website, Stuff, a transgender cancer survivor shares his story of his upcoming mastectomy. Angus Coleman was diagnosed with Langerhans Cell Histiocytosis (LCH) at just 16 months old. LCH is a rare type of cancer that can damage tissue or cause lesions to form in one or more places in the body. During his time with cancer, Angus had ongoing treatment from an endocrinologist which is now helping him take his next steps in his gender transition. “I was actually set up with an endocrinologist back when I was diagnosed with langerhans cell histiocytosis  [rare cancer]which is actually the doctor you need […]

  • Leaving hospital

    When a child or young person finishes cancer treatment it can be a time of mixed emotions. Often this is a long anticipated event, and when it feels like they should be happy and celebrating, families may also feel anxious and overwhelmed. Leaving hospital and going home will be a different experience for each person, but Cancer Advisor has some resources on finishing treatment that may be useful. “Leaving hospital can be a scary time for a lot of families. They talk about leaving the safety net of the hospital, leaving their oncology family. Often losing this close support is the […]

  • Nerida’s story: Turning Brisbane gold for kids with cancer

    The 1st of September is our D-Day anniversary, so this year I decided to channel my energy into something positive. I turned Brisbane Gold. Brisbane City Hall, The Story Bridge and Victoria Bridge all shone gold for Childhood Cancer Awareness. This is how it happened: Receiving a diagnosis On the 1st September 2015 my Son Xavier was diagnosed with Stage III Embryonal Rhabdomyosarcoma of the bladder at just 23 months of age. We had to move to Brisbane from Townsville for treatment and as I knew very few people here, I started a Facebook support group page for the oncology […]

  • Ritchie’s story: Caring for a child with cancer and Down syndrome

    In January Ritchie Farrugia was told his six-year-old daughter Bella had Acute Lymphoblastic Leukaemia also known as ALL. Bella also has Down syndrome and at the time of diagnosis, Ritchie had already been her full-time carer for the last four years. Cancer Advisor spoke to him about being a dad in a children’s hospital ward and how Down syndrome affects cancer treatment. What’s it like being a dad in a children’s hospital ward? The first few months I stayed at the hospital full-time with Bella. My wife’s back is not too good, not that mine was great but, it was […]

  • Bereavement and grief

    Bereavement is the loss of someone through death, and grief is our response to loss. The grief that follows a young person’s death lasts a lifetime, and losing a child to cancer is one of the most devastating things that can happen to any family. When your child dies is a booklet from Redkite that uses the real experiences of bereaved parents to help other parents and carers following the death of their child.  It is important to remember that grief is personal and unique – everybody grieves differently and that’s okay. There will be a number of different factors that will […]

  • Battle Weapons: A coping guide for young people with cancer

    Hi, my name is Nell and I’m the author of Battle Weapons: A coping guide for young people with cancer. I’m also a nurse and a cancer survivor. In high school, when we started the discussion about our future, my career advisor suggested nursing. This really appealed to me; to serve and support people at their most vulnerable is a great honour and privilege. Nursing is very diverse and I wasn’t sure for a long time where I wanted to take it, until I was diagnosed with cancer. I know my life’s purpose is to help those with cancer, particularly young people. […]

  • “Death doesn’t have to mean failure” – Sacha’s story

    The Guardian in the UK has published Sacha’s story about her son’s end-of-life experience. David, known as DD, was diagnosed with medulloblastoma – a brain tumour – at aged 11. He died five years later. Sacha has since written a book, Follow the Child to help other parents struggling to come to terms with the death of their child. “I consulted four other sets of parents who were passionate about improving end-of-life care,” she explains. “We have laughed and cried and then needed the reassurance of experienced social workers, palliative nurse and paediatric palliative consultants to check our efforts. I only regret that […]

  • Our Cancer Journey: Team Bella – Never give up!

    In March of 2014, our family was thrown onto the oncology roller coaster when Bella (aged four), was diagnosed with Acute Lymphoblastic Leukaemia (high risk). She would complete two and half years of chemotherapy bringing her into remission. Unfortunately, Bella relapsed in March 2017, eight months post treatment.     Bella would endure another eight months of intense treatment (including more intense chemotherapy followed by two bone marrow transplants). During her treatment, as her mum, carer and advocate, I decided to document her arduous journey. To provide awareness about childhood cancer and in doing so, provide hope, comfort and inspiration […]

  • 8 resources for when your child goes back to school after treatment

    If your child has finished their cancer treatment, you might be wondering how they will transition back into full time study. Your child may be looking forward to the social aspect of school … although, they may be nervous too.  Perhaps you’re keen for a new sense of routine, and school seems like a good way to add some structure post-treatment.  You might also be wondering what information or support your child’s teacher will need. Here are some helpful resources if your child is about to start back at school, or just needs some extra support adjusting. 1  A teacher’s […]

  • Mary Dalton – Teen vlogger with ewing’s sarcoma

    Mary Dalton is a teen vlogger who was diagnosed with ewing’s sarcoma at the age of 14. On her YouTube channel she shares her experiences with cancer and her passion for filmmaking. You can also follow her on Instagram, Twitter, Facebook and see her portfolio of work at marydaltoncreations.com.     Cancer Advisor has a range of personal stories. Or, if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for. Before you go We’d love you to share your […]

  • Burkitt’s lymphoma at 15 — Cameron’s story

    Redkite and jimmyteens.tv have created a video interview with 20-year-old Cameron who has been in remission from Burkitt’s lymphoma for the last five years. Cameron was diagnosed at 15. For two weeks he was feeling unwell with headaches, nausea, cold sweats and weight gain before he went to the doctor. “The doctor said my white cell count was pretty horrible,” he says in the video. He went to his local hospital in Redlands. “They had a fair idea it was leukaemia but they wouldn’t tell me at first, they thought I would have a bad reaction to it.” After going […]

  • Synovial sarcoma at 16 — CC’s story

    Redkite and jimmyteens.tv have created a video interview with 19-year-old Charisse aka CC who was diagnosed with a rare form of tissue cancer called synovial sarcoma at 16. In the video she says “I was like an average 16 year old and like nothing better than hanging out with my friends. I was in Year 11 at school and especially enjoyed subjects such as maths and performance.” During the film, CC tells us that synovial sarcoma is a rare form of soft tissue sarcoma and is common in adolescents. It can also be misdiagnosed as a growing pains. Throughout the […]

  • Chemotherapy for medulloblastoma — Brent’s story

    Redkite and jimmyteens.tv have created a video interview with Brent who has just started chemotherapy after having radiotherapy and surgery for medulloblastoma. Brent talks about his home town Cunnamulla, how he was diagnosed with cancer after experiencing headaches, his stem cell transplant and how life is back home being a sheep shearer. Brent is having treatment 12 hours drive from his hometown. He had 32 sessions of radiotherapy, before starting chemotherapy. “My symptoms were that I was getting real massive headaches.” He said he saw the doctor who gave him medication for a chest infection, but he got sick that […]

  • How music therapy helped a family during cancer

    Nick will never forget the day his four-year-old daughter Emily was diagnosed with an aggressive brain tumour. “It was 8.00pm on Monday 16 March, 2009 and the start of our family’s nightmare,” he says. “Our family was falling apart and we quickly realised these dedicated social workers would help us stand tall for our daughter.” Within days of her diagnosis, Emily had two major operations to remove a 5 cm tumour from her brain. While in hospital, Nick and his family received a Red Bag from Redkite, a support pack containing information, toiletries and other practical items to help during the initial […]

Comments

Comments will appear below.