• “I draw childhood cancer” – Cartoons by Angus

    I Draw Childhood Cancer is a Facebook page by talented artist Angus Olsen. His daughter Jane was diagnosed with Embryonic Rhabdomyosarcoma at 3 years old. Ever since he has created various works communicating the experience of having a child with cancer. He also draws other children from all across the world in ways that show their strength and beauty. On his Facebook page he writes: In 2016 our 2yo daughter was diagnosed with RMS cancer. In the nightmare I drew and it helped me. Now I draw childhood cancer and it somehow helps others. Cancer Advisor has a range of personal Read more [...]

  • Ritchie’s story: Caring for a child with cancer and Down syndrome

    In January Ritchie Farrugia was told his six-year-old daughter Bella had Acute Lymphoblastic Leukaemia also known as ALL. Bella also has Down syndrome and at the time of diagnosis, Ritchie had already been her full-time carer for the last four years. Cancer Advisor spoke to him about being a dad in a children’s hospital ward and how Down syndrome affects cancer treatment. What’s it like being a dad in a children’s hospital ward? The first few months I stayed at the hospital full-time with Bella. My wife’s back is not too good, not that mine was great but, it was Read more [...]

  • Siblings You Matter! – a short documentary

    Hi, My name is Genevieve Stonebridge, and I am a clinical counsellor in Victoria, BC, Canada. I created this short video ‘You Matter’ from a research study I did on the experience of undiagnosed siblings who had a brother or sister with cancer. If you want to know why I created this video and my personal connection to cancer, please read more below. If you want to just skip to learning some ways you can help support siblings then please press play!   Why I made this video: When I was 18 I was diagnosed with and treated for Hodgkin’s Lymphoma (that Read more [...]

  • “To the mom whose child just received a cancer diagnosis”

    To the mom whose child just received a cancer diagnosis is a heartfelt letter published on The Mighty. This insightful piece was written by Pauline Grady, whose son Sam is about to end his cancer treatment who says she is feeling lost. “I started thinking about the different emotions I’ve felt since the beginning,” she explains. “How lost I was at the beginning, how I felt I’d found a side of myself I never knew existed and how I’m now feeling lost again. Lost, found, lost.” Pauline begins her letter “Dear New Cancer Mom” as she reaches out to all the mothers Read more [...]

  • Dads open up about their child’s cancer treatment

    Professional British footballer and children’s writer Frank Lampard visits a CLIC Sargent Home from Home in the UK to meet with some of the dads who have a child with cancer.   These raw and powerful personal stories offer an eye-opening insight to some of the ways fathers have coped with their child’s cancer diagnosis. Cancer Advisor has a range of resources for dads whose children have cancer. Or, if you have any questions that need answering, please let us know on our Feedback and Contact form. We want to help you find what you’re looking for. Before you go We’d love Read more [...]

  • What not to say to someone with cancer

    BBC 3 has created a video of things not to say to someone with cancer including: “So is it all working down there?” “How long do you have left?” “You’re so brave” The video also gives a good insight into various people’s personal experiences with cancer, and finishes with the question, “What should you say?” Cancer Advisor has a range of resources for friends and relatives of people with cancer, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • What not to give your oncologist for Christmas

    In this SoundCloud podcast Doctor Geoff McCowage, a Paediatric Oncologist and Senior Staff Specialist at The Children’s Hospital at Westmead, talks about the people who deserve a Christmas present more than the oncologist. Cancer Advisor has a range of resources on hospital information, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Monkey In My Chair – Australia

    We signed up for Monkey in My Chair and were so happy with the program. It is a great way for your child to stay in touch with friends at school. It is an American program, but there is an Australian chapter as well. I recommend this to anyone whose child is out of school for a while on treatment. The program includes: A manual for the teachers, filled with information and resources A story book which will help the teacher to explain the child’s illness and any special needs A life-sized stuffed monkey that sits on the child’s chair Read more [...]

  • A guide for grandparents of children with cancer

    Redkite’s 36-page information booklet helps grandparents of children with cancer. Redkite spoke extensively with grandparents to understand their experiences. This booklet answers some of the many questions which grandparents of children with cancer told Redkite they would have liked answered when their grandchild was diagnosed and during their grandchild’s treatment phase. Cancer Advisor has a range of resources for grandparents, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Battle Weapons: A coping guide for young people with cancer

    Hi, my name is Nell and I’m the author of Battle Weapons: A coping guide for young people with cancer. I’m also a nurse and a cancer survivor. In high school, when we started the discussion about our future, my career advisor suggested nursing. This really appealed to me; to serve and support people at their most vulnerable is a great honour and privilege. Nursing is very diverse and I wasn’t sure for a long time where I wanted to take it, until I was diagnosed with cancer. I know my life’s purpose is to help those with cancer, particularly young people. Read more [...]

  • What parents of children with cancer want people to know

    The Huffington Post has published a list of ten things that parents of children with cancer want people to know. It was taken from suggestions by a group of mothers and includes: Be positive The fight is not over when chemo ends They don’t want to hear your “miracle cures” YOU CAN HELP Cancer Advisor has a range of content on peer support, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Adry’s story – a letter to my 17-year-old self

    In 2013, I was diagnosed with an aggressive form of cancer that required immediate surgery and multiple cycles of chemotherapy and radiotherapy. At the time I was 17 years old, in my final year of high school and was excited to reap the rewards of my hard work from all my years at school. Being diagnosed with cancer changed all that – it made me feel like my world had fallen apart. Now, at 22 years of age and having been in remission for nearly five years, I am able to look back at my cancer journey and realise that Read more [...]

  • 10 tips for coping with scanxiety by a cancer survivor

    As the name suggests, scanxiety is the anxiety a person feels in the lead-up to a cancer-detecting scan. It also includes the anxiety when waiting for the results after a scan. On Cure Today, childhood cancer survivor Tori Tomalia talks about her 10 tips for coping with scanxiety. Tori was cancer-free for over 20 years before she was diagnosed with lung cancer. The mother of three is also a wife, theatre artist, writer and lung cancer awareness advocate. Since her diagnosis in 2013 she has been having scans every three months. She says, “The week or so leading up to my Read more [...]

  • Mindfulness and meditation apps – A review

    A mum, who is also an Occupational Therapist, has put together this list of 5 mindfulness and meditation apps she has been using and shares her thoughts on them, including the pros and cons of each one. Hopefully this list acts as a helpful guide when choosing mindfulness or meditation tools for yourself or your child. Please note: A fee may be incurred to access some of these apps. Cancer Advisor has a range of resources on mindfulness, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • 8 resources for when your child goes back to school after treatment

    If your child has finished their cancer treatment, you might be wondering how they will transition back into full time study. Your child may be looking forward to the social aspect of school … although, they may be nervous too.  Perhaps you’re keen for a new sense of routine, and school seems like a good way to add some structure post-treatment.  You might also be wondering what information or support your child’s teacher will need. Here are some helpful resources if your child is about to start back at school, or just needs some extra support adjusting. 1  A teacher’s Read more [...]

  • Rhi’s story: adjusting to a new normal after cancer treatment

    My son Connor was diagnosed with cancer at three years old. Thankfully he is currently in remission. Now that I finally have spare moments to breathe and reflect upon the whole traumatic journey of childhood cancer I have to admit that one of the most difficult parts was coming home. When my son was diagnosed with stage IV neuroblastoma At the time of diagnosis we lived in Collinsville, a small mining community in rural North Queensland. Initially we were flown to Townsville hospital. After three days and much investigation we were transferred to Brisbane via Royal Flying Doctors. Our oncologist Read more [...]

  • Simple tips to stay organised while on treatment

    Parents have shared some practical tips to help you stay organised while your child is on treatment: ‘Always keep a bag packed and ready for both you and your child for unexpected hospital stays. A couple of changes of clothes, basic toiletries, snacks, a water bottle and a phone charger are all essential items when you are stuck in emergency and waiting for a bed on the ward. Also for parents, it’s handy to keep a spare pillow and blanket in the car too as emergency can have very limited resources on offer for parents.’ ‘Have a list of therapists/clinicians for the Read more [...]

  • Coping with the fear of your cancer coming back

    The Australian Cancer Survivorship Centre has created a two-page factsheet with information and practical tips about how to cope with the fear of your cancer coming back. On the factsheet it says that survivors may be worried about: “how likely it is that your cancer will come back, what symptoms to watch out for, how your body looks and feels, what survival statistics mean, follow-up appointments, significant events or dates that remind you of your cancer diagnosis, getting another type of cancer.” And it offers practical tips on how to help manage these worries. Cancer Advisor has a range of resources Read more [...]

  • Gather My Crew: coordinate help in tough times

    Gather My Crew connects people facing cancer to their community of friends and family. The online tools allows them to ask for, and receive, the practical support they actually need such as meals, transport, help with the kids and more. This can help coordinate help in tough times. How it works Our easy-to-use technology lets Gatherers (those coordinating the support) choose the help required from our comprehensive list and encourages Crew Members (friends, family, neighbours) to choose how they can help. Getting started with Gather My Crew is as simple as:  Step 1. Choose the help needed. Step 2. Invite Crew Members to lend a hand. This can Read more [...]

  • Lymphoma Australia resources, hotlines and more

    Lymphoma Australia is the only national charity dedicated to Lymphoma. Lymphoma Australia’s resources include: a factsheet on all you need to know about hodgkin lymphoma and the different subtypes. It explains the cancer, how it is diagnosed, the treatment involved, supports available and treatments under investigation. It is available to download and print from Lymphoma Australia website. a resource booklet for anyone with a new diagnosis of lymphoma including all information you need to know about this cancer, the lymphatic system, how it is diagnosed, different treatments, supports available and clinical trials. It is available to order online, download or print through Read more [...]