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Cancer Advisor
July 31, 2019
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  • Lymphoma Australia resources, hotlines and more

    Lymphoma Australia is the only national charity dedicated to Lymphoma. Lymphoma Australia’s resources include: a factsheet on all you need to know about hodgkin lymphoma and the different subtypes. It explains the cancer, how it is diagnosed, the treatment involved, supports available and treatments under investigation. It is available to download and print from Lymphoma Australia website. a resource booklet for anyone with a new diagnosis of lymphoma including all information you need to know about this cancer, the lymphatic system, how it is diagnosed, different treatments, supports available and clinical trials. It is available to order online, download or print through […]

  • Cancer Australia overview of leukaemia

    Cancer Australia gives an overview of leukaemia including: symptoms, treatment, support, chance of cure, and clinical trial. For further reading, Cancer Advisor has a range of resources on leukaemia. Or, if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for. Before you go We’d love you to share your insights and knowledge to help other people facing cancer. Your unique experience could really help others in need. Join the Cancer Advisor community and register now.

  • Siblings You Matter! – a short documentary

    Hi, My name is Genevieve Stonebridge, and I am a clinical counsellor in Victoria, BC, Canada. I created this short video ‘You Matter’ from a research study I did on the experience of undiagnosed siblings who had a brother or sister with cancer. If you want to know why I created this video and my personal connection to cancer, please read more below. If you want to just skip to learning some ways you can help support siblings then please press play!   Why I made this video: When I was 18 I was diagnosed with and treated for Hodgkin’s Lymphoma (that […]

  • What not to say to someone with cancer

    BBC 3 has created a video of things not to say to someone with cancer including: “So is it all working down there?” “How long do you have left?” “You’re so brave” The video also gives a good insight into various people’s personal experiences with cancer, and finishes with the question, “What should you say?” Cancer Advisor has a range of resources for friends and relatives of people with cancer, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Dads open up about their child’s cancer treatment

    Professional British footballer and children’s writer Frank Lampard visits a CLIC Sargent Home from Home in the UK to meet with some of the dads who have a child with cancer.   These raw and powerful personal stories offer an eye-opening insight to some of the ways fathers have coped with their child’s cancer diagnosis. Cancer Advisor has a range of resources for dads whose children have cancer. Or, if you have any questions that need answering, please let us know on our Feedback and Contact form. We want to help you find what you’re looking for. Before you go We’d love […]

  • A guide for grandparents of children with cancer

    Redkite’s 36-page information booklet helps grandparents of children with cancer. Redkite spoke extensively with grandparents to understand their experiences. This booklet answers some of the many questions which grandparents of children with cancer told Redkite they would have liked answered when their grandchild was diagnosed and during their grandchild’s treatment phase. Cancer Advisor has a range of resources for grandparents, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • What not to give your oncologist for Christmas

    In this SoundCloud podcast Doctor Geoff McCowage, a Paediatric Oncologist and Senior Staff Specialist at The Children’s Hospital at Westmead, talks about the people who deserve a Christmas present more than the oncologist. Cancer Advisor has a range of resources on hospital information, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • 10 tips for coping with scanxiety by a cancer survivor

    As the name suggests, scanxiety is the anxiety a person feels in the lead-up to a cancer-detecting scan. It also includes the anxiety when waiting for the results after a scan. On Cure Today, childhood cancer survivor Tori Tomalia talks about her 10 tips for coping with scanxiety. Tori was cancer-free for over 20 years before she was diagnosed with lung cancer. The mother of three is also a wife, theatre artist, writer and lung cancer awareness advocate. Since her diagnosis in 2013 she has been having scans every three months. She says, “The week or so leading up to my […]

  • Gather My Crew: coordinate help in tough times

    Gather My Crew connects people facing cancer to their community of friends and family. The online tools allows them to ask for, and receive, the practical support they actually need such as meals, transport, help with the kids and more. This can help coordinate help in tough times. How it works Our easy-to-use technology lets Gatherers (those coordinating the support) choose the help required from our comprehensive list and encourages Crew Members (friends, family, neighbours) to choose how they can help. Getting started with Gather My Crew is as simple as:  Step 1. Choose the help needed. Step 2. Invite Crew Members to lend a hand. This can […]

  • Mindfulness and meditation apps – A review

    A mum, who is also an Occupational Therapist, has put together this list of 5 mindfulness and meditation apps she has been using and shares her thoughts on them, including the pros and cons of each one. Hopefully this list acts as a helpful guide when choosing mindfulness or meditation tools for yourself or your child. Please note: A fee may be incurred to access some of these apps. Cancer Advisor has a range of resources on mindfulness, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • 8 resources for when your child goes back to school after treatment

    If your child has finished their cancer treatment, you might be wondering how they will transition back into full time study. Your child may be looking forward to the social aspect of school … although, they may be nervous too.  Perhaps you’re keen for a new sense of routine, and school seems like a good way to add some structure post-treatment.  You might also be wondering what information or support your child’s teacher will need. Here are some helpful resources if your child is about to start back at school, or just needs some extra support adjusting. 1  A teacher’s […]

  • Simple tips to stay organised while on treatment

    Parents have shared some practical tips to help you stay organised while your child is on treatment: ‘Always keep a bag packed and ready for both you and your child for unexpected hospital stays. A couple of changes of clothes, basic toiletries, snacks, a water bottle and a phone charger are all essential items when you are stuck in emergency and waiting for a bed on the ward. Also for parents, it’s handy to keep a spare pillow and blanket in the car too as emergency can have very limited resources on offer for parents.’ ‘Have a list of therapists/clinicians for the […]

  • Leukaemia survivor ‘blows something up’

    Leukaemia survivor Declan, who is currently in remission after being diagnosed  in 2015, has made a special request to Make-A-Wish Australia. After surviving childhood cancer, Declan’s wish was to blow something up. The 12-year-old was allowed to spend the day with Australian Federal Police’s (AFP) Specialist Response Group at its Majura headquarters in Canberra. He had the opportunity to see his wish come true; blowing up walls, doors and even have his name spelled out by explosives on a special training ground. You can watch Declan’s experience in the video below. Cancer Advisor has a range of personal stories, but we’re always looking for […]

  • CancerAid – a free app for cancer management

    CancerAid is a free app where you can find personalised cancer information. You can also store your medical records, results and specialist’s details in a single location. The app is available on iTunes and Google Play. In this demo video, you can see how CancerAid works to empower cancer patients and those who care for them. Diagnosis in particular can be a difficult time for many patients and their family. It is common to experience feelings of isolation and overwhelm at this time. By keeping all your cancer information in one place, CancerAid can help you feel more in control of your […]

  • Advice on problems paying your mortgage

    The Australian Government website, Money Smart, offers advice to help you manage your mortgage if you’re having problems with your repayments. The website provides the steps a lender can take if you fall behind on your repayments, and the details of where you can get help. It covers how to contact your lender; get help with your repayments; the steps a lender can take if you are behind on mortgage repayments; and traps to avoid slipping further into debt.” Cancer Advisor has a range of resources on finances and cancer, but we are always looking for more content. Register now to contribute content, […]

  • Bereavement and grief

    Bereavement is the loss of someone through death, and grief is our response to loss. The grief that follows a young person’s death lasts a lifetime, and losing a child to cancer is one of the most devastating things that can happen to any family. When your child dies is a booklet from Redkite that uses the real experiences of bereaved parents to help other parents and carers following the death of their child.  It is important to remember that grief is personal and unique – everybody grieves differently and that’s okay. There will be a number of different factors that will […]

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