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    Relaxation tips for parents of children with chronic illness

    Dell Children’s Medical Centre has created a video sharing relaxation tips and techniques for parents from a child psychologist. The video features Doctor Puja Patel, PhD,  a child psychologist. She talks about the benefits of relaxation and specific relaxation techniques to help you focus and re-energise to better handle stress. In the video she says, “Having a child with a chronic illness can be very stressful. It’s important to learn strategies to relax.” The video then goes on to say that relaxation helps calm your mind, increases your sense of control, and helps your child cope. Watch this video to Read more [...]

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    Lumber puncture and bone marrow aspirate

    The Hush Foundation and the Royal Children’s Hospital in Melbourne has produced a 12-minute video for children undergoing procedures such as lumber puncture and bone marrow aspirate. The video covers: Feeling worried; What are procedures such as lumber puncture and bone marrow aspirate; How to get ready for these procedures; Going under anaesthetic; and Waking up after the procedure. Cancer Advisor has a range of resources for parents of children with cancer, but we are always looking for more content. Register now to contribute content, recommend a resource, or share your personal story.

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    Late effects of childhood cancer treatment

    Cancer.Net has created a video on late effects of childhood cancer treatment. They spoke with Doctor Lisa Diller who is a Member of the American Society of Clinical Oncolgy. Doctor Diller outlines the importance of watching for late effects of treatment for childhood cancer survivors. Doctor Diller describes late effects as the side effects of the cancer treatment that occurs well after the cancer has been cured. She says to think of them as “effecting parts of the body that were detrimentally effected by therapy” such as chemotherapy, surgery or radiation. Watch the video below to find out more. Cancer Read more [...]

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    Childhood cancer survivor brings hope to cancer patients

    In this six-minute video we see how a childhood cancer survivor brings hope to young cancer patients. Georgia was diagnosed with a rare and aggressive form of leukaemia at just eight weeks old. She was also one the youngest Australians to receive a bone marrow transplant. Twenty years on, she has devoted her life to helping children with cancer as a camp leader. In this ABC video that featured on the 7:30 report, her family share their story with the ABC. Cancer Advisor has a range of personal stories, but we are always looking for more content. Register now to contribute content, Read more [...]

  • Childhood cancer: Reflections from a sister

    In this short video from the American Cancer Society, Sophie opens up about what it’s like to be sister to a child with cancer. Sophie’s brother was just three years old when he was diagnosed with rhabdomyosarcoma. Although her brother survived his cancer, Sophie talks about the lasting emotional impact it has had on her. She talks about her experience as a sibling, noting that cancer had a profound impact on her formative years. When a child or a young person is diagnosed with cancer, the enormity of this is felt throughout the family. In particular, siblings of any age feel the Read more [...]

  • Cancer vs VR

    US startup OnComfort is using virtual reality tools to reduce anxiety in cancer patients. Their apps have been shown to reduce stress, anxiety, and even the need for pain medication. The five apps use a variety of techniques to achieve this, you can learn more via these links: Aqua – an immersive experience that reduces pain and anxiety by inducing relaxation in an undersea environment AMO – an experience that uses clinical hypnosis techniques to ease pain and anxiety while a patient undergoes a short invasive procedure KIMO – for use in paediatrics, KIMO distracts and empowers patients by enabling them to fight Read more [...]

  • Caring for a son with cancer

    This New York Times documentary follows the story of Regina Hensley and her son Andrew as he fights an aggressive form of cancer, Ewing’s Sarcoma. For years, Regina Hensley struggled with addiction, even once attempting suicide. When her son Andrew was born, he gave her a reason to live. But when he received his diagnosis at 13 years old, Regina had to search for meaning once again. ‘Without Andrew, I can’t imagine what life would be about.’ -Regina Hensley In response to the documentary, the Times received almost 100 responses from parents who were caring for a sick child. Cancer Advisor Read more [...]

  • Working through treatment

    In this 11-minute TED Talk, lawyer Sarah Donnelly talks about her experiences working through treatment for breast cancer.  You can find a range of resources on work and study here. “Back at work I handed over the urgent things (…) but at that moment work wasn’t my priority. I was thinking how I was going to tell my friends and family I had cancer. I was wondering if my partner and I would ever have an opportunity to start a family (…) Work was about to play a huge role in my treatment and recovery. My job that would give me Read more [...]

  • Sarcoma survivor advocates for sarcoma awareness

    Dominique Schell is a sarcoma survivor. In her TEDx talk, the 20 year old shares her personal experience of childhood cancer. In this speech, she talks about how as a survivor she feels an obligation to advocate for all the children who die of sarcoma each year. Schell was diagnosed with osteosarcoma at 10 years old, and in the 10 years following had many complications as the result of her initial surgery. She had eight chemotherapy sessions each lasting a week, which she describes as hell. Her side effects included weight loss, cravings, exhaustion, vomiting and hair loss. She says Read more [...]

  • Help for brothers and sisters – a video for kids

    When it comes to childhood cancer, brothers and sisters of a diagnosed child have specific needs. In fact, many “well” siblings will report feeling alone, lost and neglected. While there are various materials available that have been specifically written for parents to help address these needs, we’ve found a resource that is specifically geared to kids themselves – both the diagnosed and the well sibling! The Pediatric Brain Tumor Foundation in the U.S. created this fun and educational video as a way to emotionally support siblings of kids with cancer. The video is part of the Imaginary Friend Society series and was Read more [...]

  • Cultural barriers in cancer treatment: Aboriginal communities

    VJOncology (The Video Journal of Oncolgoy) has created a video about the cultural barriers in cancer treatment in regards to Aboriginal communities. In this three minute video, Jasmine Micklem, PhD, of the South Australian Health and Medical Research Institute talks with Roslyn Weetra, an Aboriginal Elder and cancer survivor. Even though this video was created in South Australia, Doctor Micklem talks about these barriers as a nationwide issue. She opens with, “We found across all of the states there are disparities, particularly around mortality.” She continues that Aboriginal people are diagnosed with cancer at the same rate as other Australians, however, Read more [...]

  • Bereavement and grief

    Bereavement is the loss of someone through death, and grief is our response to loss. The grief that follows a young person’s death lasts a lifetime, and losing a child to cancer is one of the most devastating things that can happen to any family. When your child dies is a booklet from Redkite that uses the real experiences of bereaved parents to help other parents and carers following the death of their child.  It is important to remember that grief is personal and unique – everybody grieves differently and that’s okay. There will be a number of different factors that will Read more [...]

  • Sharing my cancer story at Sydney Colour Ball 2018

    Earlier this month, I had the pleasure of sharing my cancer story at Sydney Colour Ball 2018 at Sofitel Sydney Darling Harbour. The Sydney Colour Ball is an annual, cocktail-style event that raises important funds for Redkite so they can reach even more families affected by cancer and provide them with its essential services. Every year, guests are encouraged to dress up in the colour theme – and this year’s colour was ultraviolet! The fun, party-like atmosphere of the Sydney Colour Ball certainly helped remove any nerves I had about sharing my story. There were lots of good food, drinks Read more [...]

  • Vlog series by a young adult cancer survivor

    Steph is a 23-year-old outdoor education graduate living in Brisbane. In 2012, Steph told her cancer story as part of Redkite’s partnership with JimmyTeens. Part one: Meet Steph In this first video, Steph talks about how she decided to manage her fertility, what chemotherapy was like, how her friends and family took the news of her cancer diagnosis, and more. “I’m doing this video to help anyone out there in the same boat as me,” she says. Part two: The halfway point As Steph passes the halfway point in her treatment, she talks about how her attitude has changed, why she Read more [...]

  • What not to say to someone with cancer

    BBC 3 has created a video of things not to say to someone with cancer including: “So is it all working down there?” “How long do you have left?” “You’re so brave” The video also gives a good insight into various people’s personal experiences with cancer, and finishes with the question, “What should you say?” Cancer Advisor has a range of resources for friends and relatives of people with cancer, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • “It was don’t give up from the beginning” – Eden’s story

    In 2015, 10-year-old Eden was diagnosed with a rare cancer. In this podcast and video, the Texas Children’s Cancer Center interview Eden and her family about her diagnosis, treatment plan and becoming cancer-free. After waking up with throbbing painful bump on her leg, her family started investigating what it could be. Her parents were carrying her because she couldn’t walk. “She was continuing to decline and the pain was getting worse,” her mother explains on the video. “I moved into that mommy mode where I need to be strong for my child.” “When we found out she was diagnosed with a Read more [...]

  • Life, Interrupted – a blog about facing cancer in your 20s

    Life, Interrupted is a New York Times blog by Suleika Jaouad about facing cancer in your 20s. Suleika was diagnosed with Leukaemia at aged 22. For two years Suleika blogged about facing cancer as a young adult. Life, Interrupted is also an Emmy-award nominated video series. Cancer Advisor has a range of content if you are a young person with cancer, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • “What is cancer?” – video for kids

    The Pediatric Brain Tumor Foundation has created a fun and educational video for kids called What is Cancer? Imaginary friends Captain Beakbeard and his first mate Quincy (a squawking human) introduce concepts such as healthy versus unhealthy cells, and cancer treatment. This video is part of the Imaginary Friend Society series of animation videos. Cancer Advisor has a range of content for parents with a child with cancer, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Imaginary Friend Society – explaining cancer to kids

    Imaginary Friend Society is a series of animation videos that explains cancer to kids in a sensitive and fun way. The series was created by the Paediatric Brain Foundation and covers both the medical and emotional aspects of cancer in an effort to make children more comfortable while facing cancer. Some of the videos include topics such as: Finding out you have cancer Why am I tired all the time? How to handle shots Returning to school Being scared Long hospital stays Blood transfusions, and Feeling sad.   Cancer Advisor has a range of resources to help parents of a child Read more [...]

  • “Avery’s Fight” – a four year old faces leukaemia

    Avery’s Fight is a four-minute long video by The Project which first aired on Network Ten. On the Ten Play website it says, “Four-year-old Avery Beal has spent most of her life in and out of hospital. And just when she thought she was better, she had to buckle up for yet another fight.” Cancer Advisor has a range of personal stories, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.