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    Medulloblastoma: Key links

    According to Cancer Australia, medulloablastomas develop from a type of nerve cell in the cerebellum (the area at the back of the brain that controls movement and coordination). They tend to be aggressive tumours and often spread to other parts of the brain or spinal cord. General information  Medulloblastoma – Information, Treatment & Support – CanTeen: Brief overview of what a medulloblastoma is, diagnosis and treatment. Medulloblastoma – National Cancer Institute: Overview of occurrence, diagnosis and treatment. Medulloblastoma – Children’s Cancer Centre: Overview of diagnosis and treatment.  Podcasts  Medulloblastoma – Dr Geoff McCowage: Podcast about investigations and treatment.  Medulloblastoma stories  Read more [...]

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    Retinoblastoma: Key links

    According to Cancer Australia, retinoblastoma occurs when abnormal cells in the retina (the light-sensing area at the back of the eye) grow in an uncontrolled way. It usually occurs in young children, and can affect one or both eyes. Cancer Research UK says retinoblastoma is a rare cancer that usually affects children under five. General information Retinoblastoma treatment (PDQ®) – Patient version – National Cancer Institute: Information on staging and treatment options. What is retinoblastoma? – American Cancer Society: Overview and information on diagnosis and treatment. Retinoblastoma – Children’s Cancer Centre: Short overview of retinoblastoma. Retinoblastoma cancer – Rare Cancers Australia: Read more [...]

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    Neuroblastoma: Key links

    According to CanTeen, neuroblastoma is the most common type of solid tumour in children. It is normally found in the adrenal glands of the kidney, but can develop in the nerve tissues of the neck, chest, abdomen or pelvis. Cancer Research UK says neuroblastoma is a rare cancer that usually affects children under five. General information  Living with neuroblastoma – Practical information for during treatment – Neuroblastoma Australia: Advice and tips drawn from the experiences of families. Neuroblastoma staging – Cancer Australia: A factsheet on staging, symptoms, diagnosis, treatment and support.  Podcasts  Neuroblastoma – Dr Geoff McCowage: Podcast about diagnosis and Read more [...]

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    Non-hodgkin lymphoma: Key links

    According to Cancer Australia, hon-hodgkin lymphoma occurs when certain types of white blood cells called lymphocytes grow in an uncontrolled way. There are three main types: lymphoblastic lymphoma, Burkitt lymphoma and large cell lymphoma. It occurs more often in older children than in younger children. General information Non-hodgkin lymphoma – The Leukaemia Foundation: Information about what non-hodgkin lymphoma is, its sub types and occurrence. Childhood non-hodgkin lymphoma treatment (PDQ®) – Patient version – National Cancer Institute: Information about the types of non-hodgkin lymphoma, diagnosis and staging. Non-hodgkin lymphoma – CanTeen: Information on possible causes, symptoms and diagnosis.        Podcasts  Hodgkin and Read more [...]

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    Hodgkin lymphoma: Key links

    According to Cancer Australia, Hodgkin lymphoma, also known as Hodgkin disease, occurs when certain types of white blood cells called lymphocytes grow in an uncontrolled way. CanTeen explains that Hodgkin lymphoma can occur at any age but is more common in people in their 20s. General information Hodgkin lymphoma – Cancer Research UK: Information on what Hodgkin lymphoma is, diagnosis, treatment and survival. Hodgkin lymphoma – The Leukaemia Foundation: Information about what Hodgkin lymphoma is, its sub types and occurrence. Hodgkin lymphoma – A guide for patients and families ­– The Leukaemia Foundation: Information booklet covering topics including symptoms, treatment, Read more [...]

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    Chronic myeloid leukaemia (CML): Key links

    Chronic myeloid leukaemia (CML) is a type of cancer affecting the blood and bone marrow. According to The Leukaemia Foundation, around 330 people are diagnosed with CML each year and it has three phases: the chronic phase, accelerated phase and blast phase. General information  Chronic Myeloid Leukaemia – CanTeen: Information on causes, symptoms, diagnosis and treatment. Chronic Myeloid Leukaemia (CML) – The Leukaemia Foundation: Information on what CML is, its phases and symptoms. Chronic Myeloid Leukaemia – A guide for patients and families – The Leukaemia Foundation: An information book on CML including prognosis, treatment and managing side-effects. Podcasts  Understanding Chronic Read more [...]

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    Acute myeloid leukaemia (AML): Key links

    Acute myeloid leukaemia (AML) is a rare cancer that affects the blood and bone marrow. According to The Leukaemia Foundation, around 50 children are diagnosed with AML each year. General information  Acute myeloid leukaemia (AML) – Cancer Research UK: Information on the symptoms, types and causes of AML along with diagnosis and treatment. Acute myeloid leukaemia (AML) – The Leukaemia Foundation: Overview of diagnosis, treatment and possible side effects. Acute myeloid leukaemia – Australian Cancer Research Foundation: Information on AML symptoms, treatment and statistics. Acute myeloid leukaemia – CanTeen: Overview of AML causes, symptoms, diagnosis and treatment.  Treatment  Treatment of acute Read more [...]

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    Maddy Ritchie: I Don’t Know How She Does It

    Being 17 is complicated enough. Being told you have a rare pelvic tumour can really turn your world upside down. Meet Maddy: she’s now in her early 20s, two years cancer-free and a passionate volunteer with cancer charities. She speaks candidly about treatment, fertility, spirituality and how she got through her experience. From MamaMia’s ‘I Don’t Know How She Does It’ podcast series.

  • Life after childhood cancer treatment

    After the Rain is a short documentary that covers two stories from families about life after childhood cancer treatment – created by the Victorian Paediatric Integrated Cancer Services (PICS). You can also find a podcast series on what to expect after finishing treatment, and a “coming off treatment” handbook. On the website it says, “When treatment ends, families may feel excited about the future. Completing treatment is often an anticipated and celebrated milestone. However, it may be surprising to discover mixed feelings about coming off treatment. The coming off treatment handbook and immunisation after cancer treatment has finished resources have been designed to support families Read more [...]

  • Relaxation tips for parents of children with chronic illness

    Dell Children’s Medical Centre has created a video sharing relaxation tips and techniques for parents from a child psychologist. The video features Doctor Puja Patel, PhD,  a child psychologist. She talks about the benefits of relaxation and specific relaxation techniques to help you focus and re-energise to better handle stress. In the video she says, “Having a child with a chronic illness can be very stressful. It’s important to learn strategies to relax.” The video then goes on to say that relaxation helps calm your mind, increases your sense of control, and helps your child cope. Watch this video to Read more [...]

  • Lumber puncture and bone marrow aspirate

    The Hush Foundation and the Royal Children’s Hospital in Melbourne has produced a 12-minute video for children undergoing procedures such as lumber puncture and bone marrow aspirate. The video covers: Feeling worried; What are procedures such as lumber puncture and bone marrow aspirate; How to get ready for these procedures; Going under anaesthetic; and Waking up after the procedure. Cancer Advisor has a range of resources for parents of children with cancer, but we are always looking for more content. Register now to contribute content, recommend a resource, or share your personal story.

  • Late effects of childhood cancer treatment

    Cancer.Net has created a video on late effects of childhood cancer treatment. They spoke with Doctor Lisa Diller who is a Member of the American Society of Clinical Oncolgy. Doctor Diller outlines the importance of watching for late effects of treatment for childhood cancer survivors. Doctor Diller describes late effects as the side effects of the cancer treatment that occurs well after the cancer has been cured. She says to think of them as “effecting parts of the body that were detrimentally effected by therapy” such as chemotherapy, surgery or radiation. Watch the video below to find out more. Cancer Read more [...]

  • Childhood cancer survivor brings hope to cancer patients

    In this six-minute video we see how a childhood cancer survivor brings hope to young cancer patients. Georgia was diagnosed with a rare and aggressive form of leukaemia at just eight weeks old. She was also one the youngest Australians to receive a bone marrow transplant. Twenty years on, she has devoted her life to helping children with cancer as a camp leader. In this ABC video that featured on the 7:30 report, her family share their story with the ABC. Cancer Advisor has a range of personal stories, but we are always looking for more content. Register now to contribute content, Read more [...]

  • Childhood cancer: Reflections from a sister

    In this short video from the American Cancer Society, Sophie opens up about what it’s like to be sister to a child with cancer. Sophie’s brother was just three years old when he was diagnosed with rhabdomyosarcoma. Although her brother survived his cancer, Sophie talks about the lasting emotional impact it has had on her. She talks about her experience as a sibling, noting that cancer had a profound impact on her formative years. When a child or a young person is diagnosed with cancer, the enormity of this is felt throughout the family. In particular, siblings of any age feel the Read more [...]

  • Cancer vs VR

    US startup OnComfort is using virtual reality tools to reduce anxiety in cancer patients. Their apps have been shown to reduce stress, anxiety, and even the need for pain medication. The five apps use a variety of techniques to achieve this, you can learn more via these links: Aqua – an immersive experience that reduces pain and anxiety by inducing relaxation in an undersea environment AMO – an experience that uses clinical hypnosis techniques to ease pain and anxiety while a patient undergoes a short invasive procedure KIMO – for use in paediatrics, KIMO distracts and empowers patients by enabling them to fight Read more [...]

  • Caring for a son with cancer

    This New York Times documentary follows the story of Regina Hensley and her son Andrew as he fights an aggressive form of cancer, Ewing’s Sarcoma. For years, Regina Hensley struggled with addiction, even once attempting suicide. When her son Andrew was born, he gave her a reason to live. But when he received his diagnosis at 13 years old, Regina had to search for meaning once again. ‘Without Andrew, I can’t imagine what life would be about.’ -Regina Hensley In response to the documentary, the Times received almost 100 responses from parents who were caring for a sick child. Cancer Advisor Read more [...]

  • Working through treatment

    In this 11-minute TED Talk, lawyer Sarah Donnelly talks about her experiences working through treatment for breast cancer.  You can find a range of resources on work and study here. “Back at work I handed over the urgent things (…) but at that moment work wasn’t my priority. I was thinking how I was going to tell my friends and family I had cancer. I was wondering if my partner and I would ever have an opportunity to start a family (…) Work was about to play a huge role in my treatment and recovery. My job that would give me Read more [...]