• Re-Mission 2 – a video game for kids with cancer

    Re-Mission 2 games is an online video game created by Hopelab. The game aims to give kids and young adults with cancer a sense of power and control. The website say the games “help kids and young adults with cancer take on the fight of their lives. Based on scientific research, the games provide cancer support by giving players a sense of power and control and encouraging treatment adherence.” All six Re-Mission 2 games can be played online for free. The Re-Mission 2: Nanobot’s Revenge mobile app is available for download on iOS. “In 2014, Re-Mission 2: Nanobot’s Revenge, our cancer-fighting mobile app for iOS Read more [...]

  • Advice on problems paying your mortgage

    The Australian Government website, Money Smart, offers advice to help you manage your mortgage if you’re having problems with your repayments. The website provides the steps a lender can take if you fall behind on your repayments, and the details of where you can get help. It covers how to contact your lender; get help with your repayments; the steps a lender can take if you are behind on mortgage repayments; and traps to avoid slipping further into debt.” Cancer Advisor has a range of resources on finances and cancer, but we are always looking for more content. Register now to contribute content, Read more [...]

  • Soft tissue sarcoma

    This web page from Cancer Australia gives an overview of soft tissue sarcomas, and where they can develop. It also provides information about risk factors, symptoms, and different aspects of the cancer experience. Follow the links below to read more on each topic, or browse our other resources on soft tissue sarcomas for more information. You can also look at our phases of the cancer journey page to find information specific to diagnosis, treatment, or life after cancer. Risk factors Symptoms Diagnosis Treatment Support The cells of connective tissues – such as muscles, fat, blood vessels and lining of joints Read more [...]

  • Evaluating health information on the internet

    The Sydney Children’s Hospital Network has created a factsheet called Evaluating health information on the internet to help you navigate health information. It says, “It is important to evaluate the information you have found during a search on the Internet to make sure it is accurate and comes from a reliable source. When evaluating, think critically and don’t accept any information at face value.” The factsheets also suggests that you ask yourself questions such : Who is responsible for the website or social media channel? Is the information accurate? Is the information objective? Is the information up-to-date? Does the content of Read more [...]

  • Relaxation tips for parents of children with chronic illness

    Dell Children’s Medical Centre has created a video sharing relaxation tips and techniques for parents from a child psychologist. The video features Doctor Puja Patel, PhD,  a child psychologist. She talks about the benefits of relaxation and specific relaxation techniques to help you focus and re-energise to better handle stress. In the video she says, “Having a child with a chronic illness can be very stressful. It’s important to learn strategies to relax.” The video then goes on to say that relaxation helps calm your mind, increases your sense of control, and helps your child cope. Watch this video to Read more [...]

  • How kindness can make a difference in cancer care

    The Conversation has published an article on how kindness can make a difference in cancer care. It says, “Cancer may not be life-ending, but it usually is life-changing. A cancer diagnosis instantaneously turns life upside down for patients and families. Cancer care is a “high-emotion” service, and the care team must not only effectively treat the disease but also address patients’ intense emotions.” The article explores how six types of kindness can improve cancer care. They are: deep listening, empathy, generous acts, timely care, gentle honesty and support for family caregivers. Cancer Advisor has a range of resources on wellbeing, but we Read more [...]

  • Navigating finances – using insurance during cancer

    If you’re facing cancer, navigating insurance entitlements might not be on your radar. We’ve found some resources that could help you understand the various insurance entitlements out there and how you can access them. Have we missed something? If there is a finance question you need answered, please don’t hesitate to let us know and we will do what we can to answer it for you. Cancer Advisor has a range of resources on finances and cancer, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Discussing your child’s cancer over social media

    If you’re a parent, you may be wondering how to talk about your child’s cancer over social media. The Paediatric Integrated Cancer Service (PICS) has created a factsheet to help you carefully use social media websites and emails to share and discuss your child’s cancer information. On the website it says: “Responsible use of social media by parents and, more so, teenagers, is critical to safeguard your family’s privacy regarding personal information and information about your child’s cancer diagnosis and treatment. There are potential risks and dangers that may not be apparent at present but may prove harmful later on in Read more [...]

  • Late effects of childhood cancer treatment

    Cancer.Net has created a video on late effects of childhood cancer treatment. They spoke with Doctor Lisa Diller who is a Member of the American Society of Clinical Oncolgy. Doctor Diller outlines the importance of watching for late effects of treatment for childhood cancer survivors. Doctor Diller describes late effects as the side effects of the cancer treatment that occurs well after the cancer has been cured. She says to think of them as “effecting parts of the body that were detrimentally effected by therapy” such as chemotherapy, surgery or radiation. Watch the video below to find out more. Cancer Read more [...]

  • Questions to ask your doctor at diagnosis

    The Cancer Council has created a list of questions you might like to ask your doctor and treating team about your diagnosis, treatment and clinical trials. On the website it says: “When cancer is diagnosed you enter into a partnership with your doctor and other health care professionals. To help you get the best care you have the right to: ask questions be specifically informed about the details of your care make an informed choice of treatment from the options available to you It is important to ask questions, especially if you are unsure or unclear and feel you need Read more [...]

  • Australian children’s cancer clinical trials registry

    The Australian and New Zealand Haemotolgy/Oncology Centre (ANZCHOG) has created a children’s cancer clinical trials registry. On the website it says: “This registry lists all clinical trials open to children and adolescents with cancer or blood disorders currently in progress at children’s cancer centres in Australia. This information should be used in conjunction with advice from health care professionals.” ANZCHOG also answers FAQs such as: What is a clinical trial? What does it mean for my child? Who should I talk to about potential clinical trials? How can I receive more information? Cancer Advisor has a range of resources on Read more [...]

  • Bone tumours in children and teenagers

    Cancer Australia gives an overview of bone tumours in children and teenagers. The web page says, “Bone tumours occur when abnormal cells in the bones grow in an uncontrolled way. There are 2 main types of bone tumours in children: Osteosarcoma forms from cells called osteoblasts. It usually develops at the ends of the long bones, such as the arms or legs. Ewing sarcoma (also called Ewing family of tumours) forms from a type of stem cell in the bone marrow. It can form in the bones of the arms, legs, hands, feet, spine, skull, ribs, shoulder blades or hips. Ewing sarcomas can also Read more [...]

  • Childhood cancer survivor brings hope to cancer patients

    In this six-minute video we see how a childhood cancer survivor brings hope to young cancer patients. Georgia was diagnosed with a rare and aggressive form of leukaemia at just eight weeks old. She was also one the youngest Australians to receive a bone marrow transplant. Twenty years on, she has devoted her life to helping children with cancer as a camp leader. In this ABC video that featured on the 7:30 report, her family share their story with the ABC. Cancer Advisor has a range of personal stories, but we are always looking for more content. Register now to contribute content, Read more [...]

  • National Carers Week 2018

    It’s National Carers Week – a time to celebrate and recognise the 2.7 million unpaid Australian carers. Carers not only contribute to our community but they make a huge impact on our national economy. In fact, according to the National Carers Week website, “Should all carers decide to stop performing their caring role, it would cost the country $60.3 billion per year to replace those supports – that’s over $1 billion per week.” National Carers Week provides a chance to show your appreciation and learn about carers and caring in Australia. You can get involved in the various events happening this week, or read Read more [...]

  • Childhood cancer: Reflections from a sister

    In this short video from the American Cancer Society, Sophie opens up about what it’s like to be sister to a child with cancer. Sophie’s brother was just three years old when he was diagnosed with rhabdomyosarcoma. Although her brother survived his cancer, Sophie talks about the lasting emotional impact it has had on her. She talks about her experience as a sibling, noting that cancer had a profound impact on her formative years. When a child or a young person is diagnosed with cancer, the enormity of this is felt throughout the family. In particular, siblings of any age feel the Read more [...]

  • Cancer breakthrough wins Nobel Prize

    Two immunologists have been awarded the  Nobel prize in Physiology or Medicine for their groundbreaking work on cancer therapy. It is the first time the development of a cancer therapy has been recognised with a Nobel prize. James P. Allison,  chair of the department of immunology at MD Anderson Cancer Center in Houston,  and Tasuku Honjo, a professor in the department of immunology and genomic medicine at Kyoto University in Japan, have paved the way for a new class of cancer drugs. These drugs are already improving patient outcomes and have drastically changed scientists’ understanding of the potential of the human immune Read more [...]

  • Cancer vs VR

    US startup OnComfort is using virtual reality tools to reduce anxiety in cancer patients. Their apps have been shown to reduce stress, anxiety, and even the need for pain medication. The five apps use a variety of techniques to achieve this, you can learn more via these links: Aqua – an immersive experience that reduces pain and anxiety by inducing relaxation in an undersea environment AMO – an experience that uses clinical hypnosis techniques to ease pain and anxiety while a patient undergoes a short invasive procedure KIMO – for use in paediatrics, KIMO distracts and empowers patients by enabling them to fight Read more [...]

  • Who is who in your treating team at hospital

    If you are about to go to hospital for cancer treatment you might be wondering who is who in your treating team at hospital. Canteen has published a list of who is who in a hospital medical team. “They could be involved in: Administering treatment, Giving you information and advice. Or simply supporting you and your family during this time” The treating team includes: Medical Oncologist Radiation Oncologist Surgical Oncologist Radiologist Oncology Nurse Specialist Registered Nurse Registrar Resident/Intern It also discusses the roles of a social worker, physiotherapist, clinical psychologist and a dietitian. Cancer Advisor has a range of resources on the Read more [...]

  • What to say to your friend who has just been bereaved

    This blog post on Let’s Talk About Loss discusses what to say to your friend who has just been bereaved. The author of the blog is Beth Rowland whose mother died when she was 20. However, the practical advice in this post is also relevant for people hoping to support and communicate with a bereaved parent. Beth says, “I’ve experienced my fair share of people ‘putting their foot in it’ and saying the wrong thing, so I’m going to attempt to pass on a few pearls of wisdom about what to say – and what not to say – when the Read more [...]

  • Supporting sleep in young cancer patients

    Sleeping difficulties are common among children and adolescents, and cancer patients are no exception. In fact, children with cancer are especially susceptible to difficult sleep and need particular support to get the rest needed for health and recovery. Why Sleep is Difficult for Young People With Cancer Whether in a hospital setting or undergoing treatment at home, young people with cancer may experience disturbed sleep due to environmental conditions, side effects, and schedules. In a hospital setting, young cancer patients may be disturbed by environmental conditions, including sounds and lights throughout the night (and daytime, if napping). Disruptions from medical Read more [...]