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Cancer Advisor
July 31, 2019
Displaying 1 - 20 of 49
  • Oncology parental support Facebook groups – QLD

    In Queensland at Lady Cilento Childrens Hospital there are two parent support Facebook groups. The first one is for all parents and called ‘The Real Housewives of 11B’. The second is for fathers or similar male significant family members of an oncology child and called ‘LCCH Oncology dads’. Both are run by parents, have set guidelines and all requests to join must respond to a set group of questions. Neither allow staff, support staff or charity staff to join and neither are affiliated with Queensland Health. They are both simply support groups, run by the parents for the parents. The […]

  • Support for grandparents of kids with cancer

    Grandparents of Kids with Cancer is a web page which offers support for grandparents around the world, giving them a place to share their experiences with other people who have a grandchild with cancer. They advocate for the important role that grandparents play in the family, and acknowledge the emotional and practical needs of grandparents. On the website they say, “Being told that your grandchild has cancer is devastating. Not only is your grandchild going through the most traumatic experience, but your own child is also facing the worst pain imaginable. Talking to other grandparents who are going through the […]

  • ReCaPTure LiFe – online support program

    ReCaPTure LiFe (Resilience and Coping skills for young People To Live well Following cancer) is a new online support program for young cancer survivors aged 15-25. The program enables them to share their experiences with other young people and learn new ways to get back to ‘normal’ after cancer. The groups run online and include a six-week online group program (which works like Skype), with sessions lasting approximately 90 minutes led by a CanTeen counsellor. Cancer Advisor has a range of resources on support services, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • What parents of children with cancer want people to know

    The Huffington Post has published a list of ten things that parents of children with cancer want people to know. It was taken from suggestions by a group of mothers and includes: Be positive The fight is not over when chemo ends They don’t want to hear your “miracle cures” YOU CAN HELP Cancer Advisor has a range of content on peer support, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • For friends: coupons to give someone with cancer

    The Mighty has published a list of printable coupons to help friends and family members show their support to anyone affected by cancer. The Cancer Editor writes: “Here are some coupons that feature thoughtful and loving gestures that can make the life of your loved one a bit easier as they continue treatment and recover. Feel free to print and fill them out or copy and paste them into an email instead.” Coupon suggestions include: Babysit your kids A lift to the hospital Paying a medical bill What would you add to the list? Tell us in the comments below. Cancer […]

  • Leaving hospital

    When a child or young person finishes cancer treatment it can be a time of mixed emotions. Often this is a long anticipated event, and when it feels like they should be happy and celebrating, families may also feel anxious and overwhelmed. Leaving hospital and going home will be a different experience for each person, but Cancer Advisor has some resources on finishing treatment that may be useful. “Leaving hospital can be a scary time for a lot of families. They talk about leaving the safety net of the hospital, leaving their oncology family. Often losing this close support is the […]

  • CanDo – a free app to help during cancer treatment

    CanDo is a free app that bridges people going through cancer treatment with their support network. The app aims to deliver positive social and practical benefits such as: Less social isolation Greater personal autonomy A reduction in the financial impact of stopping work More attention on general wellbeing Reducing the impact of stress and anxiety by removing concerns about how the “little things” get done. CanDo is strictly not-for-profit. It is also affiliated with The Garvan Institute of Medical Research, a founding sponsor. It is available on iTunes and Google Play. Cancer Advisor has a range of resources on peer support, but we’re always […]

  • Kids’ Guide to Cancer – a free app

    The Kids’ Guide to Cancer app is a free, interactive educational program that answers the most common questions children have about cancer, developed by Camp Quality. The app contains age-appropriate information about cancer, hospitals, medicines, treatment and people who help. The app also features animated stories promoting peer support and understanding. It is available on iTunes and Google Play. The Kids’ Guide to Cancer App won “Best in Class” at the 2015 and 2017 Interactive Media Awards – their highest honour! This app has been designed for children and parents; teaches; and health professionals. Cancer Advisor has a range of resources on apps, but we’re […]

  • Children’s hospitals in Australia

    Children’s hospitals (also known as paediatric hospitals) specialise in the medical needs of children and teenagers. At children’s hospital the staff are specifically trained in taking care of children and teenagers. Chances are there will also be more child-geared activities on hand such as kids films and child entertainers. Expand the boxes below to learn more about children’s hospitals in each state. Some children’s hospitals do not treat children’s cancer, so you may need to move to a different state for treatment. Cancer Advisor has a range of resources for families who need to do this, including personal stories from […]

  • Feel the Magic – helping kids deal with grief

    Feel the Magic provides grief education and support to bereaved children and their families. They hope to help alleviate the pain and isolation felt by the death of a loved one including siblings of children and young people who have died of cancer. Their biggest program is Camp Magic – Australia’s largest and leading grief education and support program for bereaved children and teenagers between the ages of 7-17. Camp Magic is held over a three-day weekend during the NSW school holidays. Currently there are four camps held each year in the months of April, July, October and December. It is supported and […]

  • Advice on friendship during your cancer journey

    This article Cancer and your friends from Redkite offers some advice around friendship during your cancer journey. Often young people find telling their friends about their cancer diagnosis particularly difficult. Even without cancer, people and relationships change – you may find that certain friendships change and new ones may emerge. Some ways to maintain friendships during this time include: Try to be honest and open with them if you can and lean on them when you need to Warn them you may be snappy or angry at times and ask them to forgive you if needed Ask them to keep inviting you […]

  • Livewire – an online community for teens

    When you’re a teenager with a serious illness, not many people really get what you’re going through – and it can be hard for siblings too. That’s why we’ve created Livewire: a safe community for young people aged 12-20 living with disability, serious illness or a chronic health condition who can do with crew who understand and offer a little extra support. Online, Livewire is a place you can visit any time, knowing you’re always amongst friends who genuinely care. Here, you can swap stories, ask for ideas, and talk about whatever’s going on in your life, from operations, MRIs […]

  • 8 resources for when your child goes back to school after treatment

    If your child has finished their cancer treatment, you might be wondering how they will transition back into full time study. Your child may be looking forward to the social aspect of school … although, they may be nervous too.  Perhaps you’re keen for a new sense of routine, and school seems like a good way to add some structure post-treatment.  You might also be wondering what information or support your child’s teacher will need. Here are some helpful resources if your child is about to start back at school, or just needs some extra support adjusting. 1  A teacher’s […]

  • What’s behind the mask of a Cancer Dad?

    What’s behind the mask of a Cancer Dad? is a collection of short quotes from anonymous fathers who have a child with cancer. The quotes were collected by author Mark Meyers whose youngest daughter died of Ewing’s Sarcoma in 2015.  Each quote begins with I think you should know that … Examples of quotes include: I think you should know that on some level I feel like this is my fault. I think you should know that I would have died for my baby but wasn’t given the option. I think you should know that not only did I wonder “Why my […]

  • Humans of New York: paediatric cancer

    Humans of New York has published a series of stories and photographs on paediatric cancer. The content was gathered from the Pediatrics Department of Memorial Sloan Kettering Cancer Center and includes quotes such as: “All doctors have those patients who sit on our shoulder.” “My biggest challenge? Two words for you: third grade. It’s kind of like second grade but harder.” “A big part of a nurse’s job is translation.” “And the hardest part about being an oncologist is trying to be patient.” “I got cancer in the summer when the pools were opening.” “So I’m afraid all the time. And […]

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