• Statistics and information about childhood cancers

    Researchers can’t tackle childhood cancer without a set of current, accurate, nationally consistent data – and that’s exactly what the Australian Children’s Cancer Registry provides. The ACCR is managed by Cancer Council Queensland with the assistance of all state and territory cancer registries and all treating paediatric oncology hospitals. It comprises more than 20,000 cases of childhood cancer diagnosed in Australia since 1983. While the statistics and information developed by the ACCR are of great benefit to clinicians and other researchers, they’re also freely available to anyone with an interest or involvement in childhood cancers including families of paediatric cancer patients. […]

  • Ben’s story: ‘Cancer has taught me a lot’

    Diagnosis & treatment After having a sore on his neck for a few weeks Ben decided to make an appointment with his local GP in Perth. Although Ben was more preoccupied about the sore, after hearing about Ben’s history of headaches the doctor insisted on getting tests done. A few weeks later, the 23-year-old was told he had a benign brain tumour and needed surgery. However, after testing the biopsy the tumour turned out to be a malignant four centimetre mass. It was classified as stage 2 with characteristics of stage 3 astrocytoma glioma. The mass was on the right […]

  • Germs, genetics and childhood leukaemia

    Mel Greaves received a knighthood late last year for his research into why children develop leukaemia. In this article from The Guardian, he explains how it’s now understood that a combination of genetic mutations in the womb, and chronic inflammation in response to infection, can lead to leukaemia developing. Greaves is currently working on a ‘cocktail of microbes’ that could block the inflammation response, potentially reducing the risk of leukaemia and other diseases.

  • Maddy Ritchie: I Don’t Know How She Does It

    Being 17 is complicated enough. Being told you have a rare pelvic tumour can really turn your world upside down. Meet Maddy: she’s now in her early 20s, two years cancer-free and a passionate volunteer with cancer charities. She speaks candidly about treatment, fertility, spirituality and how she got through her experience. From MamaMia’s ‘I Don’t Know How She Does It’ podcast series.

  • Cognitive difficulties after brain cancer

    The Conversation outlines the ways that cancer in a child’s brain has the potential to impact their overall future health and cause long-term disturbances to the central nervous system of survivors.intro Known as ‘late effects’, these cognition and communication difficulties can affect personal and social development. Early intervention can lessen the impact of such difficulties on survivors.   Cancer Advisor has a range of resources on brain cancer and late effects, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.  

  • “To the mom whose child just received a cancer diagnosis”

    To the mom whose child just received a cancer diagnosis is a heartfelt letter published on The Mighty. This insightful piece was written by Pauline Grady, whose son Sam is about to end his cancer treatment who says she is feeling lost. “I started thinking about the different emotions I’ve felt since the beginning,” she explains. “How lost I was at the beginning, how I felt I’d found a side of myself I never knew existed and how I’m now feeling lost again. Lost, found, lost.” Pauline begins her letter “Dear New Cancer Mom” as she reaches out to all the mothers […]

  • A guide for grandparents of children with cancer

    Redkite’s 36-page information booklet helps grandparents of children with cancer. Redkite spoke extensively with grandparents to understand their experiences. This booklet answers some of the many questions which grandparents of children with cancer told Redkite they would have liked answered when their grandchild was diagnosed and during their grandchild’s treatment phase. Cancer Advisor has a range of resources for grandparents, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Monkey In My Chair – Australia

    We signed up for Monkey in My Chair and were so happy with the program. It is a great way for your child to stay in touch with friends at school. It is an American program, but there is an Australian chapter as well. I recommend this to anyone whose child is out of school for a while on treatment. The program includes: A manual for the teachers, filled with information and resources A story book which will help the teacher to explain the child’s illness and any special needs A life-sized stuffed monkey that sits on the child’s chair […]

  • Battle Weapons: A coping guide for young people with cancer

    Hi, my name is Nell and I’m the author of Battle Weapons: A coping guide for young people with cancer. I’m also a nurse and a cancer survivor. In high school, when we started the discussion about our future, my career advisor suggested nursing. This really appealed to me; to serve and support people at their most vulnerable is a great honour and privilege. Nursing is very diverse and I wasn’t sure for a long time where I wanted to take it, until I was diagnosed with cancer. I know my life’s purpose is to help those with cancer, particularly young people. […]

  • Lymphoma Australia resources, hotlines and more

    Lymphoma Australia is the only national charity dedicated to Lymphoma. Lymphoma Australia’s resources include: a factsheet on all you need to know about hodgkin lymphoma and the different subtypes. It explains the cancer, how it is diagnosed, the treatment involved, supports available and treatments under investigation. It is available to download and print from Lymphoma Australia website. a resource booklet for anyone with a new diagnosis of lymphoma including all information you need to know about this cancer, the lymphatic system, how it is diagnosed, different treatments, supports available and clinical trials. It is available to order online, download or print through […]

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