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Cancer Advisor
July 31, 2019
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Adolescent (13-17)
  • Livewire – an online community for teens

    When you’re a teenager with a serious illness, not many people really get what you’re going through – and it can be hard for siblings too. That’s why we’ve created Livewire: a safe community for young people aged 12-20 living with disability, serious illness or a chronic health condition who can do with crew who understand and offer a little extra support. Online, Livewire is a place you can visit any time, knowing you’re always amongst friends who genuinely care. Here, you can swap stories, ask for ideas, and talk about whatever’s going on in your life, from operations, MRIs […]

  • Unravel Pediatric cancer … until there is a cure

    Unravel Pediatric Cancer is a US based not-for-profit organisation working to spread knowledge about the realities of childhood cancer. They raise funds to: support research that investigates the causes and mechanisms of paediatric cancer; develop more effective and less toxic treatments; and find a cure. Unravel has produced an infographic to articulate their mission and show some statistics about childhood cancer in the United States.    After her daughter was diagnosed with diffuse intrinsic pontine glioma (DIPG), Libby Kranz co-founded Unravel. DIPG is a type of brain cancer which doesn’t respond to chemotherapy and is terminal. She recalls: Her doctor […]

  • Looking after yourself during cancer

    This page from Redkite gives an overview of how to take care of yourself physically and emotionally during your cancer journey. A large part of dealing with cancer is learning how to take care of yourself so that you are better prepared for challenges, but also ready to enjoy good things that come your way. Redkite offers tips on: Self-care Looking after your body Looking after your mind Having fun and taking risks Redkite provides a range of support services for young people with cancer including practical tips, financial assistance, and professional counselling. Cancer Advisor has a range of resources […]

  • Battle Weapons: A coping guide for young people with cancer

    Hi, my name is Nell and I’m the author of Battle Weapons: A coping guide for young people with cancer. I’m also a nurse and a cancer survivor. In high school, when we started the discussion about our future, my career advisor suggested nursing. This really appealed to me; to serve and support people at their most vulnerable is a great honour and privilege. Nursing is very diverse and I wasn’t sure for a long time where I wanted to take it, until I was diagnosed with cancer. I know my life’s purpose is to help those with cancer, particularly young people. […]

  • Teaching resiliency during paediatric cancer treatment

    The Rare Disease Report in the U.S. has released a video with its transcript on the importance of teaching resiliency during childhood cancer treatment. Cancer Advisor has a range of resources on wellbeing, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • For teachers: 5 ways to help a student with cancer

    This article by We Are Teachers offers teachers some guidance on how to welcome a child back to school after cancer treatment. Children undergoing cancer treatment often miss significant amounts of class, and returning back to school can be a daunting experience. Teachers have an important role to play in ensuring the child has a smooth transition back into the classroom environment. This article covers some tips for teachers to help: Roll out – or roll up – the red carpet Personalise the learning Include the student in ALL class activities Facilitate friendships Talk to the child about everyday things Cancer […]

  • Raising a child with cancer as a single mother

    On the Pediatric Oncology Group of Ontario website, Ashmara talks about raising her daughter as a single mother. Ashmara’s daughter Adaejah also has down syndrome. Cancer Advisor has a range of personal stories, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Post-traumatic stress symptoms after cancer

    Stanford Children’s Health in the USA has put together a list of post-traumatic stress symptoms after childhood and adolescent cancer They say, “It is important that your child receives high quality emotional care during and after cancer treatment to avoid the development of post-traumatic stress disorder (PTSD).” Cancer Advisor has a range of content on emotional wellbeing, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • “Death doesn’t have to mean failure” – Sacha’s story

    The Guardian in the UK has published Sacha’s story about her son’s end-of-life experience. David, known as DD, was diagnosed with medulloblastoma – a brain tumour – at aged 11. He died five years later. Sacha has since written a book, Follow the Child to help other parents struggling to come to terms with the death of their child. “I consulted four other sets of parents who were passionate about improving end-of-life care,” she explains. “We have laughed and cried and then needed the reassurance of experienced social workers, palliative nurse and paediatric palliative consultants to check our efforts. I only regret that […]

  • What parents of children with cancer want people to know

    The Huffington Post has published a list of ten things that parents of children with cancer want people to know. It was taken from suggestions by a group of mothers and includes: Be positive The fight is not over when chemo ends They don’t want to hear your “miracle cures” YOU CAN HELP Cancer Advisor has a range of content on peer support, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Humans of New York: paediatric cancer

    Humans of New York has published a series of stories and photographs on paediatric cancer. The content was gathered from the Pediatrics Department of Memorial Sloan Kettering Cancer Center and includes quotes such as: “All doctors have those patients who sit on our shoulder.” “My biggest challenge? Two words for you: third grade. It’s kind of like second grade but harder.” “A big part of a nurse’s job is translation.” “And the hardest part about being an oncologist is trying to be patient.” “I got cancer in the summer when the pools were opening.” “So I’m afraid all the time. And […]

  • Single parenting a child with cancer – Ariel’s Story

    Single Parenting a Child with Cancer is an article by Roswell Park Cancer Centre about mother Ariel and her daughter, Natalie. Natalie was diagnosed with stage 3 embryonal rhabdomyosarcoma (a rare form of cancer) at four years old. Ariel offers up her tips such as find your tribe, ask for help, ask questions, be gentle with yourself and keep the faith.   Cancer Advisor has a range of personal stories, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Children’s painful procedures and operations factsheet

    The Sydney Children’s Hospital Network has created a factsheet offering tips and advice on children’s painful procedures and operations. As a parent you know your child best, and can therefore greatly assist staff in helping your child cope with the procedure or surgery. Be honest and calm when informing your child about the procedure and answering his/her questions. Decide on which coping strategies you and your child think would be most helpful. It is generally helpful for a child to have a parent present during a painful procedure and/or when your child wakes up after surgery. If you feel unable […]

  • Lady Cilento Children’s Hospital school program

    The Lady Cilento Children’s Hospital school program in Queensland caters for children and teenagers from Prep to Year 12. Prep to Year 4 students are taught in the Junior Campus on Stanley Street (located right beside the hospital). Students from Year five to 12 are taught in the classrooms on Level 8 of the hospital. Teachers will also come to you if you are unable to leave the wards. Cancer Advisor has a range of resources on school, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Feel the Magic – helping kids deal with grief

    Feel the Magic provides grief education and support to bereaved children and their families. They hope to help alleviate the pain and isolation felt by the death of a loved one including siblings of children and young people who have died of cancer. Their biggest program is Camp Magic – Australia’s largest and leading grief education and support program for bereaved children and teenagers between the ages of 7-17. Camp Magic is held over a three-day weekend during the NSW school holidays. Currently there are four camps held each year in the months of April, July, October and December. It is supported and […]

  • You Can: Connecting Young Australians Facing Cancer

    You Can Connect is an online community that connects young Australians facing cancer. This social support network is customised and tailored to your specific needs as you can search for people by age, location, hospital and cancer diagnosis. It is also 100% user-generated and engages all who are involved in an individual’s cancer fight: the survivors, fighters, supporters and caregivers. Whether you want to upload a video diary, write a blog post or just peruse other people’s stories – You Can’s mission is to ensure that no young person faces their cancer experience alone.   You Can was set up […]

  • “TJ’s Cancer Journey” – A mum’s blog about her teenager

    TJ’s Cancer Journey is a blog about my 15-year-old son who was diagnosed with Hodgkin Lymphoma at the age of 14. I am documenting my son’s journey with cancer so that one day he can look back at it and remember everything he went through during this difficult time. Hopefully our experiences will be able to help others who are going through similar. It is a journal of his cancer experience so far and includes: how he felt when he was diagnosed; how cancer has affected him and those around him; what treatment he is receiving; what tests he has completed; […]

  • CanDo – a free app to help during cancer treatment

    CanDo is a free app that bridges people going through cancer treatment with their support network. The app aims to deliver positive social and practical benefits such as: Less social isolation Greater personal autonomy A reduction in the financial impact of stopping work More attention on general wellbeing Reducing the impact of stress and anxiety by removing concerns about how the “little things” get done. CanDo is strictly not-for-profit. It is also affiliated with The Garvan Institute of Medical Research, a founding sponsor. It is available on iTunes and Google Play. Cancer Advisor has a range of resources on peer support, but we’re always […]

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