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    From cancer patient to university graduate

    In this story published by UNSW, Adry Adwan talks about how he went from cancer patient to university graduate. Below he talks a bit about why he wrote this piece. When I was diagnosed with an aggressive form of testicular cancer at the age of 17, I believed that I would not be able to achieve my dream of going to university. I was in year 12 at the time of my diagnosis, working hard to pass the HSC. Like all my classmates, I was ready to reap the rewards of all of my hard work and begin the adventures Read more [...]

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    Explainer: What is nanomedicine and how can it improve childhood cancer treatment?

    The Conversation has published an article about how Australian researchers are looking at how they can use nanomedicine to improve the side effects of cancer treatment for children. What is nanomedicine?  Nano means tiny – a nanometre is one-billionth of a metre! – and nanomedicine is the use of nanoparticles in medicine. This article talks about using nanoparticles to transport drugs to places they wouldn’t be able to go on their own. How does that help with side effects?  Nanoparticles can be designed to: better target cancer cells, which means less damage to healthy cells break down into harmless byproducts transport Read more [...]

  • “How bravery beads help us” – Nic and Izzy’s story

    On Cancer Advisor, Nic shares why her daughter, Izzy, uses bravery beads. Mothers Day 2018 will be a day that I will never forget. My 12-year-old daughter was diagnosed with AML – Acute Myeloid Leukaemia. We were admitted to Westmead Children’s Hospital and a few days later a beautiful French speaking Lady, Anne, came into our room. She gave Izzy the choice of a cloth bag and then presented her with what would become her journey of beads. The journey would start with some coloured beads, her name and a love heart. At the time it did not seem like Read more [...]

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    Advice on problems paying your mortgage

    The Australian Government website, Money Smart, offers advice to help you manage your mortgage if you’re having problems with your repayments. The website provides the steps a lender can take if you fall behind on your repayments, and the details of where you can get help. It covers how to contact your lender; get help with your repayments; the steps a lender can take if you are behind on mortgage repayments; and traps to avoid slipping further into debt.” Cancer Advisor has a range of resources on finances and cancer, but we are always looking for more content. Register now to contribute content, Read more [...]

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    Clinical trials bring hope – Lesley and Casey’s story

    On the Dell’s Children website, a mother and father share their story about how clinical trials brought hope to their family during their son’s cancer treatment. Rex was 17 months old when he was diagnosed with high-risk neuroblastoma. The article says: “Upon Rex’s diagnosis, Lesley and her husband, Casey, knew their family faced a long, uphill battle.  High-risk neuroblastoma is an aggressive and deadly form of childhood cancer, and the odds for survival were not in their child’s favor.  They agreed to enroll Rex into a clinical trial study using an experimental drug, Unituxin, for children with high-risk neuroblastoma.” In this Read more [...]

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    Soft tissue sarcoma

    This web page from Cancer Australia gives an overview of soft tissue sarcomas, and where they can develop. It also provides information about risk factors, symptoms, and different aspects of the cancer experience. Follow the links below to read more on each topic, or browse our other resources on soft tissue sarcomas for more information. You can also look at our phases of the cancer journey page to find information specific to diagnosis, treatment, or life after cancer. Risk factors Symptoms Diagnosis Treatment Support The cells of connective tissues – such as muscles, fat, blood vessels and lining of joints Read more [...]

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    Evaluating health information on the internet

    The Sydney Children’s Hospital Network has created a factsheet called Evaluating health information on the internet to help you navigate health information. It says, “It is important to evaluate the information you have found during a search on the Internet to make sure it is accurate and comes from a reliable source. When evaluating, think critically and don’t accept any information at face value.” The factsheets also suggests that you ask yourself questions such : Who is responsible for the website or social media channel? Is the information accurate? Is the information objective? Is the information up-to-date? Does the content of Read more [...]

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    Relaxation tips for parents of children with chronic illness

    Dell Children’s Medical Centre has created a video sharing relaxation tips and techniques for parents from a child psychologist. The video features Doctor Puja Patel, PhD,  a child psychologist. She talks about the benefits of relaxation and specific relaxation techniques to help you focus and re-energise to better handle stress. In the video she says, “Having a child with a chronic illness can be very stressful. It’s important to learn strategies to relax.” The video then goes on to say that relaxation helps calm your mind, increases your sense of control, and helps your child cope. Watch this video to Read more [...]

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    How kindness can make a difference in cancer care

    The Conversation has published an article on how kindness can make a difference in cancer care. It says, “Cancer may not be life-ending, but it usually is life-changing. A cancer diagnosis instantaneously turns life upside down for patients and families. Cancer care is a “high-emotion” service, and the care team must not only effectively treat the disease but also address patients’ intense emotions.” The article explores how six types of kindness can improve cancer care. They are: deep listening, empathy, generous acts, timely care, gentle honesty and support for family caregivers. Cancer Advisor has a range of resources on wellbeing, but we Read more [...]

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    Lumber puncture and bone marrow aspirate

    The Hush Foundation and the Royal Children’s Hospital in Melbourne has produced a 12-minute video for children undergoing procedures such as lumber puncture and bone marrow aspirate. The video covers: Feeling worried; What are procedures such as lumber puncture and bone marrow aspirate; How to get ready for these procedures; Going under anaesthetic; and Waking up after the procedure. Cancer Advisor has a range of resources for parents of children with cancer, but we are always looking for more content. Register now to contribute content, recommend a resource, or share your personal story.

  • Adult hospitals and treatment centres in Australia

    When it comes to hospital and treatment centres, teenagers and young people facing cancer have a unique set of needs. Where a young person is treated will most likely depend on their age. If you’re a young adult, you’ll go to an adult hospital. However, teenagers can be sent to either a children’s hospital or an adult facility. What hospital you go to may also depend on where you live or even what type of cancer you have. Not all hospitals offer cancer treatment, so you may have to travel, especially if you live in a regional or rural area. Some Read more [...]

  • Navigating finances – using insurance during cancer

    If you’re facing cancer, navigating insurance entitlements might not be on your radar. We’ve found some resources that could help you understand the various insurance entitlements out there and how you can access them. Have we missed something? If there is a finance question you need answered, please don’t hesitate to let us know and we will do what we can to answer it for you. Cancer Advisor has a range of resources on finances and cancer, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Nausea and vomiting during cancer treatment: a video

    EviQ Education, a program of the Cancer Institute New South Wales, has created a video about nausea and vomiting during cancer treatment. The video was made for adults but it could also be useful in regards to children experiencing nausea and vomiting during cancer treatment. The video discusses: What it is Why it happens When you should call your doctor or nurse What you can do to reduce the risk of it happening The video features Associate Professor and Medical Oncologist, Craig Lewis as well as interviews with a cancer survivor about how they managed their nausea and vomiting. Cancer Advisor Read more [...]

  • Cancer survivor and amputee’s cute Halloween costume

    The Mighty has shared a very cute story: titled 3-Year-Old Cancer Survivor Proves You Don’t Need Two Arms to Enjoy Halloween. The article is about Scarlette, a three-year-old amputee and cancer survivor. Scarlette and her mother Simone found a fun and creative way to celebrate Halloween. Simone says, “When she was born, which was four weeks early, her left arm was gigantic … It was about three times the size of her right arm. They had no idea what to make of it.” After many tests, Scarlette was diagnosed with undifferentiated high-grade spindle cell sarcoma, a rare type of cancer. “We did a Read more [...]

  • Tosh’s story: how he helped end his daughter’s cancer

    After more than two years of chemotherapy, Tosh Nagashima helped end his daughter’s cancer. Cancer Advisor called him to talk about his family’s experience. In March 2014 four-year-old Bella was diagnosed with high-risk Acute Lymphoblastic Leukaemia (ALL). After arriving at the Royal Children’s Hospital in Melbourne in an ambulance, Bella started chemotherapy immediately. During treatment, Bella’s father continued to work full-time and take care of their youngest daughter Olivia while his wife Vanie spent day and night in the hospital. “After work I would visit Bella in the hospital every day,” he explains. “It was hard for her younger sister Read more [...]

  • Discussing your child’s cancer over social media

    If you’re a parent, you may be wondering how to talk about your child’s cancer over social media. The Paediatric Integrated Cancer Service (PICS) has created a factsheet to help you carefully use social media websites and emails to share and discuss your child’s cancer information. On the website it says: “Responsible use of social media by parents and, more so, teenagers, is critical to safeguard your family’s privacy regarding personal information and information about your child’s cancer diagnosis and treatment. There are potential risks and dangers that may not be apparent at present but may prove harmful later on in Read more [...]

  • Late effects of childhood cancer treatment

    Cancer.Net has created a video on late effects of childhood cancer treatment. They spoke with Doctor Lisa Diller who is a Member of the American Society of Clinical Oncolgy. Doctor Diller outlines the importance of watching for late effects of treatment for childhood cancer survivors. Doctor Diller describes late effects as the side effects of the cancer treatment that occurs well after the cancer has been cured. She says to think of them as “effecting parts of the body that were detrimentally effected by therapy” such as chemotherapy, surgery or radiation. Watch the video below to find out more. Cancer Read more [...]

  • Questions to ask your doctor at diagnosis

    The Cancer Council has created a list of questions you might like to ask your doctor and treating team about your diagnosis, treatment and clinical trials. On the website it says: “When cancer is diagnosed you enter into a partnership with your doctor and other health care professionals. To help you get the best care you have the right to: ask questions be specifically informed about the details of your care make an informed choice of treatment from the options available to you It is important to ask questions, especially if you are unsure or unclear and feel you need Read more [...]

  • Australian children’s cancer clinical trials registry

    The Australian and New Zealand Haemotolgy/Oncology Centre (ANZCHOG) has created a children’s cancer clinical trials registry. On the website it says: “This registry lists all clinical trials open to children and adolescents with cancer or blood disorders currently in progress at children’s cancer centres in Australia. This information should be used in conjunction with advice from health care professionals.” ANZCHOG also answers FAQs such as: What is a clinical trial? What does it mean for my child? Who should I talk to about potential clinical trials? How can I receive more information? Cancer Advisor has a range of resources on Read more [...]

  • Advice on friendship during your cancer journey

    This article Cancer and your friends from Redkite offers some advice around friendship during your cancer journey. Often young people find telling their friends about their cancer diagnosis particularly difficult. Even without cancer, people and relationships change – you may find that certain friendships change and new ones may emerge. Some ways to maintain friendships during this time include: Try to be honest and open with them if you can and lean on them when you need to Warn them you may be snappy or angry at times and ask them to forgive you if needed Ask them to keep inviting you Read more [...]