• Neuroblastoma: Key links

    According to CanTeen, neuroblastoma is the most common type of solid tumour in children. It is normally found in the adrenal glands of the kidney, but can develop in the nerve tissues of the neck, chest, abdomen or pelvis. Cancer Research UK says neuroblastoma is a rare cancer that usually affects children under five. General information  Living with neuroblastoma – Practical information for during treatment – Neuroblastoma Australia: Advice and tips drawn from the experiences of families. Neuroblastoma staging – Cancer Australia: A factsheet on staging, symptoms, diagnosis, treatment and support.  Podcasts  Neuroblastoma – Dr Geoff McCowage: Podcast about diagnosis and Read more [...]

  • Neuroblastoma staging

    Cancer Australia’s factsheet provides an overview of neuroblastoma staging and the symptoms and treatment that can be experienced. It covers topics such as risk factors for the disease, how diagnosis is made, and what support services are available. Diagnostic tests will also help indicate the stage of the tumour. Staging determines where the tumour is, how large it is, which nearby organs are involved, and whether the cancer has spread to other parts of the body. This will be important for the treatment team to assess the best options, and to determine the prognosis for your child. See below for a Read more [...]

  • Clinical trials bring hope – Lesley and Casey’s story

    On the Dell’s Children website, a mother and father share their story about how clinical trials brought hope to their family during their son’s cancer treatment. Rex was 17 months old when he was diagnosed with high-risk neuroblastoma. The article says: “Upon Rex’s diagnosis, Lesley and her husband, Casey, knew their family faced a long, uphill battle.  High-risk neuroblastoma is an aggressive and deadly form of childhood cancer, and the odds for survival were not in their child’s favor.  They agreed to enroll Rex into a clinical trial study using an experimental drug, Unituxin, for children with high-risk neuroblastoma.” In this Read more [...]

  • Rhi’s story: adjusting to a new normal after cancer treatment

    My son Connor was diagnosed with cancer at three years old. Thankfully he is currently in remission. Now that I finally have spare moments to breathe and reflect upon the whole traumatic journey of childhood cancer I have to admit that one of the most difficult parts was coming home. When my son was diagnosed with stage IV neuroblastoma At the time of diagnosis we lived in Collinsville, a small mining community in rural North Queensland. Initially we were flown to Townsville hospital. After three days and much investigation we were transferred to Brisbane via Royal Flying Doctors. Our oncologist Read more [...]

  • MIBG scans

    Podcast about the MIBG scans used to evaluate and monitor neuroblastoma by Dr Geoff McCowage, a Paediatric Oncologist and Senior Staff Specialist at The Children’s Hospital at Westmead.