The Guardian in the UK has published Sacha’s story about her son’s end-of-life experience.
David, known as DD, was diagnosed with medulloblastoma – a brain tumour – at aged 11. He died five years later.
Sacha has since written a book, Follow the Child to help other parents struggling to come to terms with the death of their child. “I consulted four other sets of parents who were passionate about improving end-of-life care,” she explains. “We have laughed and cried and then needed the reassurance of experienced social workers, palliative nurse and paediatric palliative consultants to check our efforts. I only regret that I was never able to meet their wonderful children. DD would have been proud of us and might quote his favourite Buddhist-inspired phrase: ‘Life is suffering, but every second of life is a miracle.'”