Tag: bereavement

  • Danielle’s story: One day at a time

    They say that our first love will stay in our hearts forever. This couldn’t be more true for 26-year Danielle Paparone. At 19 she was swept off her feet by an affable young man with striking blue eyes. After a blissful year together, he was diagnosed with a brain tumour. However, treatment was unsuccessful, and he died three years after diagnosis. Danielle shares her incredible love story with Cancer Advisor and tells us how she turns her pain into purpose. “He had very big blue eyes and that’s what drew me in,” Danielle says. Jake first laid his big blue […]

  • Caring for a son with cancer

    This New York Times documentary follows the story of Regina Hensley and her son Andrew as he fights an aggressive form of cancer, Ewing’s Sarcoma. For years, Regina Hensley struggled with addiction, even once attempting suicide. When her son Andrew was born, he gave her a reason to live. But when he received his diagnosis at 13 years old, Regina had to search for meaning once again. ‘Without Andrew, I can’t imagine what life would be about.’ -Regina Hensley In response to the documentary, the Times received almost 100 responses from parents who were caring for a sick child. Cancer Advisor […]

  • Bereavement and grief

    Bereavement is the loss of someone through death, and grief is our response to loss. The grief that follows a young person’s death lasts a lifetime, and losing a child to cancer is one of the most devastating things that can happen to any family. When your child dies is a booklet from Redkite that uses the real experiences of bereaved parents to help other parents and carers following the death of their child.  It is important to remember that grief is personal and unique – everybody grieves differently and that’s okay. There will be a number of different factors that will […]

  • “Death doesn’t have to mean failure” – Sacha’s story

    The Guardian in the UK has published Sacha’s story about her son’s end-of-life experience. David, known as DD, was diagnosed with medulloblastoma – a brain tumour – at aged 11. He died five years later. Sacha has since written a book, Follow the Child to help other parents struggling to come to terms with the death of their child. “I consulted four other sets of parents who were passionate about improving end-of-life care,” she explains. “We have laughed and cried and then needed the reassurance of experienced social workers, palliative nurse and paediatric palliative consultants to check our efforts. I only regret that […]

  • Feel the Magic – helping kids deal with grief

    Feel the Magic provides grief education and support to bereaved children and their families. They hope to help alleviate the pain and isolation felt by the death of a loved one including siblings of children and young people who have died of cancer. Their biggest program is Camp Magic – Australia’s largest and leading grief education and support program for bereaved children and teenagers between the ages of 7-17. Camp Magic is held over a three-day weekend during the NSW school holidays. Currently there are four camps held each year in the months of April, July, October and December. It is supported and […]

  • Living without your child: for parents and carers

    Living without your child is a nine-page booklet written using the real experiences of bereaved parents about life after your child dies. It was adapted from CLIC Sargent by Redkite. This booklet is a part of a series which also includes When your child isn’t going to get better and When your child dies. The booklet has sections including: Understanding your grief Dealing with other people Supporting your other children Family and friends Your child’s personal belongings Your child’s room Will I ever be happy again? Cancer Advisor has a range of resources on end of life, but we’re always looking for more content. Leave a […]

  • Hearts for Eva – Sharleigh’s story

    ABC online has published a 6-min documentary and personal story by bereaved mother Sharleigh Stevenson about her daughter Eva. This touching video also features comments by Gerald Purchase, a clinical psychologist as well as footage and interviews with Eva herself. At four-years-old Eva was diagnosed with rhabdomyosarcoma. Sharleigh was told there was no cure. They lived in Victorian regional town called Sunraysia. A local man called John Burfitt held a fundraiser called “Hearts for Eva” to raise money for Eva’s cancer treatment. Hearts for Eva became a global phenomenon. Cancer Advisor has a range of resources on end of life, but we’re […]

  • By My Side: Stories from parents whose child has died from cancer

    By My Side: Stories from parents whose child has died from cancer is both a book and short video created for bereaved parents. You can order the book free of charge by calling (1800 733 548) or emailing support@redkite.org.au. By My Side – the book This book of quotes was produced by Redkite in partnership with Dr Leigh Donovan – a clinician, researcher and advocate in paediatric palliative care and loss, grief and bereavement. Over 100 parents participated in a research study (2012-2016) where they generously shared the story of their child’s cancer experience, end of life and family’s journey into bereavement. The quotes and […]

  • Bereavement and Cancer – Grandparent grief

    The NSW Paediatric Palliative Care Programme share information on grandparent grief. The webpage also features a 40-minute video that interviews two grandparents who have been grieving for their grandchild. Before you go Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for.

  • Feel the Magic – online grief community

    The Feel the Magic online grief community is a private Facebook group that has been created to connect grieving families with each other. Please note: it is not exclusively for oncology families, but for families experiencing all kinds of grief. Cancer Advisor has a range of  resources on grief, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Journeys – Palliative care for children and teenagers

    Journeys – Palliative care for children and teenagers is a 153-page PDF for families and carers facing a child or teenager’s life-limiting illness, created by Palliative Care Australia. This PDF covers topics such as: What is palliative care and who provides it? Treatment options Your rights and responsibilities Financial support Places to care for your child and care planning Symptom management Feelings of loss and grief Helping yourself, helping your children, and helping your partner Help from family and friends Your community, and spiritual care and support Talking to children about dying and death End-of-life decisions and funeral planning The dying process […]

  • When your child dies: for parents and carers

    When your child dies is a booklet from Redkite that gives an overview of what to expect when your child dies from cancer. It is written using the real experiences of bereaved parents. This resource is adapted from the publication “One day at a time: When your child dies”, produced by CLIC Sargent, the UK’s leading cancer charity for children and young people, and their families. This booklet is a part of the One day at a time series which also includes Living without your child and When your child isn’t going to get better. Being with your child during […]

  • When your child isn’t going to get better: for parents and carers

    When your child isn’t going to get better is a booklet from Redkite that uses the real experiences of parents who are told that their child will die from cancer. This resource is adapted from the publication “One day at a time: When your child dies”, produced by CLIC Sargent, the UK’s leading cancer charity for children and young people, and their families. This booklet is a part of the One day at a time series which also includes Living without your child and When your child dies There may come a time when you are told that your child isn’t […]