• Ben’s story: ‘Cancer has taught me a lot’

    Diagnosis & treatment After having a sore on his neck for a few weeks Ben decided to make an appointment with his local GP in Perth. Although Ben was more preoccupied about the sore, after hearing about Ben’s history of headaches the doctor insisted on getting tests done. A few weeks later, the 23-year-old was told he had a benign brain tumour and needed surgery. However, after testing the biopsy the tumour turned out to be a malignant four centimetre mass. It was classified as stage 2 with characteristics of stage 3 astrocytoma glioma. The mass was on the right Read more [...]

  • Danielle’s story: One day at a time

    They say that our first love will stay in our hearts forever. This couldn’t be more true for 26-year Danielle Paparone. At 19 she was swept off her feet by an affable young man with striking blue eyes. After a blissful year together, he was diagnosed with a brain tumour. However, treatment was unsuccessful, and he died three years after diagnosis. Danielle shares her incredible love story with Cancer Advisor and tells us how she turns her pain into purpose. “He had very big blue eyes and that’s what drew me in,” Danielle says. Jake first laid his big blue Read more [...]

  • Support for grandparents of kids with cancer

    Grandparents of Kids with Cancer is a web page which offers support for grandparents around the world, giving them a place to share their experiences with other people who have a grandchild with cancer. They advocate for the important role that grandparents play in the family, and acknowledge the emotional and practical needs of grandparents. On the website they say, “Being told that your grandchild has cancer is devastating. Not only is your grandchild going through the most traumatic experience, but your own child is also facing the worst pain imaginable. Talking to other grandparents who are going through the Read more [...]

  • Looking after yourself during cancer

    This page from Redkite gives an overview of how to take care of yourself physically and emotionally during your cancer journey. A large part of dealing with cancer is learning how to take care of yourself so that you are better prepared for challenges, but also ready to enjoy good things that come your way. Redkite offers tips on: Self-care Looking after your body Looking after your mind Having fun and taking risks Redkite provides a range of support services for young people with cancer including practical tips, financial assistance, and professional counselling. Cancer Advisor has a range of resources Read more [...]

  • Tips for telling a kid they have cancer

    A paediatric cancer specialist shares their tips for telling a kid they have cancer. For more information, Cancer Advisor has a range of resources on diagnosis. Before you go … If you’ve been affected by childhood or young adult cancer, please share your insights and knowledge to help other people facing cancer. Join the Cancer Advisor community and register now.

  • Free eBook for teenage and young adult cancer survivors

    Aftercure: A guide for teenage and young adult survivors of childhood cancer is 28-page booklet by the UK Children’s Cancer and Leukaemia Group. The eBook is aimed at young people who had treatment as a child. Topics include follow up and future care, education and jobs, travel and vaccination, and fertility and sexual function. Note: some themes explored in this booklet will be specific to a UK audience. Published: March 2017 Next Review: 2020 Before you go … If you’ve been affected by childhood or young adult cancer, please share your insights and knowledge to help other people facing cancer. Join the Cancer Read more [...]

  • The Value of Community During Cancer

    Below is a blog post on The Value of Community During Cancer. This article first appeared on www.YouCan.org and was contributed by Anastasia who lost her sister to cancer. Chrisy is my dear sister who was diagnosed at the age of 17 in 2010 with rhabdomyosarcoma (a very very rare type of cancer). At the time of her diagnosis she was in year 12 and I was in year 10. As we were both young, it was very hard to comprehend what cancer is and how fast it could ruin the human body. Slowly we started to learn everything from the moment Read more [...]

  • Perspectives on marriage with critically-ill children

    Make a Wish in the U.S. asked parents of critically ill children to share perspectives on marriage with critically-ill children. The website says, “Marriage is already a complicated and often tense subject. Add into that the stresses of caring for a child with a critical illness. This week for our community question, we asked how parents have made it through these circumstances with or without divorce and their advice to others.” Read more here.  Cancer Advisor has a range of resources for partners, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • 7 resources for relationship wellbeing for young people

    ­­Valentine’s Day is almost here, which means it’s hard to escape the roses and hearts all over social media, and shop windows. If you’re dealing with cancer right now, romance may not be top of your agenda. However, love and sex are important parts of life, and there are ways to keep the spark alive through tough times. Whether you’re a young adult thinking about starting a sexual relationship or a teenager whose partner has a diagnosis, we’ve found a range of resources to help keep your intimate and romantic relationships in good shape. 1 Title: A Guide to Supporting Read more [...]

  • Cancer and sex – Staying close when the going gets tough

    Live Better With Cancer have published an infographic Cancer And Sex: Staying Close When The Going Gets Tough. It discussed what might happen to your sex life, and what you can do about it, after being diagnosed with cancer. Cancer Advisor has found a range of resources on cancer and sex. Psst … before you go If you haven’t already make sure to register. That way you can comment, give a ‘thumbs up’ to material you like, and submit your own content. Best of all, you’ll receive information tailored to your specific needs and preferences such as particular cancer type and age group. And Read more [...]

  • Bereavement and Cancer – Grandparent grief

    The NSW Paediatric Palliative Care Programme share information on grandparent grief. The webpage also features a 40-minute video that interviews two grandparents who have been grieving for their grandchild. Before you go Cancer Advisor has a range of resources on End of Life including sibling grief, grandparent grief and paediatric palliative care. Please note: if you have any questions that need answering or specific content you want to see, please let us know on our Feedback and Contact. We want to help you find what you’re looking for.

  • A guide for grandparents of children with cancer

    Redkite’s 36-page information booklet helps grandparents of children with cancer. Redkite spoke extensively with grandparents to understand their experiences. This booklet answers some of the many questions which grandparents of children with cancer told Redkite they would have liked answered when their grandchild was diagnosed and during their grandchild’s treatment phase. Cancer Advisor has a range of resources for grandparents, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.