Tag: hodgkin lymphoma

  • Hodgkin lymphoma: Key links

    According to Cancer Australia, Hodgkin lymphoma, also known as Hodgkin disease, occurs when certain types of white blood cells called lymphocytes grow in an uncontrolled way. CanTeen explains that Hodgkin lymphoma can occur at any age but is more common in people in their 20s. General information Hodgkin lymphoma – Cancer Research UK: Information on what Hodgkin lymphoma is, diagnosis, treatment and survival. Hodgkin lymphoma – The Leukaemia Foundation: Information about what Hodgkin lymphoma is, its sub types and occurrence. Hodgkin lymphoma – A guide for patients and families ­– The Leukaemia Foundation: Information booklet covering topics including symptoms, treatment, […]

  • Lymphoma Australia resources, hotlines and more

    Lymphoma Australia is the only national charity dedicated to Lymphoma. Lymphoma Australia’s resources include: a factsheet on all you need to know about hodgkin lymphoma and the different subtypes. It explains the cancer, how it is diagnosed, the treatment involved, supports available and treatments under investigation. It is available to download and print from Lymphoma Australia website. a resource booklet for anyone with a new diagnosis of lymphoma including all information you need to know about this cancer, the lymphatic system, how it is diagnosed, different treatments, supports available and clinical trials. It is available to order online, download or print through […]

  • Oncologist and cancer survivor gains more funding

    The Rivard Report has published a profile on Doctor Gregory Aune, a childhood cancer survivor and oncologist. Doctor Aune was diagnosed with hodgkin lymphoma 30 years ago at age 16. He is now a paediatric oncologist and researcher with Greehey Children’s Cancer Research Institute at UT Health San Antonio. This profile details how Aune advocated for more cancer funding and research. He is a member of the Alliance for Childhood Cancer, and lobbied for the passage of the Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act.  The STAR act aims to expand research into childhood cancer, help improve efforts to identify the disease, […]

  • Finding hope during childhood cancer – Nancy’s story

    Not ‘just’ a moment is a heartfelt and poetic piece written by Nancy Hamner about finding hope, published on the US website 2Surviveonline. Nancy is a mother whose son Ryan was first diagnosed with cancer at aged six. He has survived four occurrences of hodgkin lymphoma during his childhood. In her personal story she offers up pieces of wisdom such as:  Life is not always what it appears; it is possibly never what it looks like. [H]is doctor has given us a plan, and with that is bestowed the option of hope—a place we choose to live. May you see joy and […]

  • “TJ’s Cancer Journey” – A mum’s blog about her teenager

    TJ’s Cancer Journey is a blog about my 15-year-old son who was diagnosed with Hodgkin Lymphoma at the age of 14. I am documenting my son’s journey with cancer so that one day he can look back at it and remember everything he went through during this difficult time. Hopefully our experiences will be able to help others who are going through similar. It is a journal of his cancer experience so far and includes: how he felt when he was diagnosed; how cancer has affected him and those around him; what treatment he is receiving; what tests he has completed; […]

  • Introduction to understanding lymphoma

    Introduction to understanding lymphoma is a three-part video series developed by the Leukaemia Foundation with information and support for individuals diagnosed with lymphoma. Part One Lymphoma: what lymphoma is, diagnosis and treatment is 22-minutes long and features haematologist and clinician researcher, Dr Kylie Mason.   Part Two Lymphoma: living well after a lymphoma diagnosis is 11-minutes long and features haematology advanced practice nurse, Priscilla Gates.   Part Three Lymphoma: personal accounts from people living with lymphoma is 22-minutes long.   Cancer Advisor has a range of resources on lymphoma, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Cancer Australia: Hodgkin lymphoma in children

    Cancer Australia gives an overview of Hodgkin disease (Hodgkin lymphoma) including: risk factors, symptoms, diagnosis, treatment, support, chance of cure, and clinical trials. Before you go … If you’ve been affected by childhood or young adult cancer, please share your insights and knowledge to help other people facing cancer. Join the Cancer Advisor community and register now.

  • Ellie Douglas – Cancer Q&A

    Ellie was 17 when she was diagnosed with hodgkin lymphoma 2a. In her first YouTube video, she answers some questions about her diagnosis and treatment and how she is feeling. In particular, she talks about losing her hair. This happened within 15 days of her first chemotherapy treatment, and Ellie expresses that she actually felt relieved. The uncertainty about when it would happen, how much hair she would lose, whether she would lose it all at once; these questions made her feel anxious, so she was relieved when it finally happened.   When a subscriber asked her how to help […]