Tag: how to advocate for your rights

  • Nerida’s story: Turning Brisbane gold for kids with cancer

    The 1st of September is our D-Day anniversary, so this year I decided to channel my energy into something positive. I turned Brisbane Gold. Brisbane City Hall, The Story Bridge and Victoria Bridge all shone gold for Childhood Cancer Awareness. This is how it happened: Receiving a diagnosis On the 1st September 2015 my Son Xavier was diagnosed with Stage III Embryonal Rhabdomyosarcoma of the bladder at just 23 months of age. We had to move to Brisbane from Townsville for treatment and as I knew very few people here, I started a Facebook support group page for the oncology […]

  • Working through treatment

    In this 11-minute TED Talk, lawyer Sarah Donnelly talks about her experiences working through treatment for breast cancer.  You can find a range of resources on work and study here. “Back at work I handed over the urgent things (…) but at that moment work wasn’t my priority. I was thinking how I was going to tell my friends and family I had cancer. I was wondering if my partner and I would ever have an opportunity to start a family (…) Work was about to play a huge role in my treatment and recovery. My job that would give me […]

  • Oncologist and cancer survivor gains more funding

    The Rivard Report has published a profile on Doctor Gregory Aune, a childhood cancer survivor and oncologist. Doctor Aune was diagnosed with hodgkin lymphoma 30 years ago at age 16. He is now a paediatric oncologist and researcher with Greehey Children’s Cancer Research Institute at UT Health San Antonio. This profile details how Aune advocated for more cancer funding and research. He is a member of the Alliance for Childhood Cancer, and lobbied for the passage of the Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act.  The STAR act aims to expand research into childhood cancer, help improve efforts to identify the disease, […]

  • Could ‘disease prestige’ impact resources and support?

    In this article, The Conversation discusses ‘disease prestige’ and how it impacts resources and support. The article is titled: When you’re sick, the support you’ll get may depend on the ‘worth’ of your disease and looks at: high vs low prestige diseases, research (including research funding) around disease prestige, disease prestige ranking of 40 conditions and illnesses, and A tale of mental illness, a TED talk by Elyn Saks. Cancer Advisor has a range of resources on support services, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Advocacy and research for rare cancers

    Rare Cancer Australia discusses their advocacy and research and why it’s so important. Cancer Advisor has a range of resources on rare cancers, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Speaking up for your child with cancer

    In this two-page factsheet, the Paediatric Integrated Cancer Service (PICS) offers guidance on advocating for your child. They have also compiled tips by parents for parents on speaking up for your child with cancer. The factsheet says: “Being an advocate for your child means speaking up for them. This can take considerable courage. There are many reasons why you may wish to speak up for your child while he or she is receiving treatment. It is always important that you do so. These are tips compiled by parents, for parents, to help make the experience a little easier.” Cancer Advisor […]

  • Navigating end of life: Australian laws

    End of life law in Australia  is a guide created by Queensland University of Technology (QUT). It provides accurate, reliable information to help  people navigate end of life issues. There are sometimes that can arise with the end of life decision-making. This is a broad introduction to end of life laws in each Australian State and Territory to help you know the law, and your rights and duties, which includes sections like: Recent Developments Legal Overview Advance Directives Stopping Treatment Palliative Care Organ Donation Euthanasia and Assisted Dying Research Projects Publications and Presentations   “As Australia’s population rapidly ages, legal and ethical issues […]

  • Advocate for your rights

    What are your rights as someone with cancer? And how can you protect or advocate for these rights? This factsheet by Work After Cancer is funded by the Australian Government to help you understand the law and what your rights and responsibilities are as a person with cancer. Your rights and responsibilities as a patient with cancer: You have a right to fair treatment You do not have to disclose your cancer diagnosis You cannot be denied a job because of cancer You can ask for a reasonable work adjustments You have a responsibility to inform your employer when taking […]

  • Advocating and problem-solving for those facing cancer

    As a supporter of someone with cancer, you may not realise how involved you can be, and how to advocate on behalf of the person facing cancer, if you choose to. What does advocating mean? Advocating can mean a number of different things: Making sure your voice or opinion is heard Influencing or causing something to change Asking for more information on things like side effects Asking for a second opinion Making sure a young person explores all their fertility options Finding ways to help a young person keep studying One of the most important things you can do is […]

  • Advocating for yourself when you have cancer

    Being a cancer patient or caring for a cancer patient can sometimes feel like you’re always on the receiving end. You receive tests, you receive a diagnosis and you receive treatment. What you may not realise is how involved you can be in the decision-making process if you want to. What is advocating? Advocating has a few different meanings. It can be as simple as making sure your voice or opinion is heard. It can also mean making changes. This might involve something as simple as asking for more information about a side effect or as important as deciding to […]