Tag: life after cancer

  • Ben’s story: ‘Cancer has taught me a lot’

    Diagnosis & treatment After having a sore on his neck for a few weeks Ben decided to make an appointment with his local GP in Perth. Although Ben was more preoccupied about the sore, after hearing about Ben’s history of headaches the doctor insisted on getting tests done. A few weeks later, the 23-year-old was told he had a benign brain tumour and needed surgery. However, after testing the biopsy the tumour turned out to be a malignant four centimetre mass. It was classified as stage 2 with characteristics of stage 3 astrocytoma glioma. The mass was on the right […]

  • Maddy Ritchie: I Don’t Know How She Does It

    Being 17 is complicated enough. Being told you have a rare pelvic tumour can really turn your world upside down. Meet Maddy: she’s now in her early 20s, two years cancer-free and a passionate volunteer with cancer charities. She speaks candidly about treatment, fertility, spirituality and how she got through her experience. From MamaMia’s ‘I Don’t Know How She Does It’ podcast series.

  • Life after childhood cancer treatment

    After the Rain is a short documentary that covers two stories from families about life after childhood cancer treatment – created by the Victorian Paediatric Integrated Cancer Services (PICS). You can also find a podcast series on what to expect after finishing treatment, and a “coming off treatment” handbook. On the website it says, “When treatment ends, families may feel excited about the future. Completing treatment is often an anticipated and celebrated milestone. However, it may be surprising to discover mixed feelings about coming off treatment. The coming off treatment handbook and immunisation after cancer treatment has finished resources have been designed to support families […]

  • Late effects of childhood cancer treatment

    Cancer.Net has created a video on late effects of childhood cancer treatment. They spoke with Doctor Lisa Diller who is a Member of the American Society of Clinical Oncolgy. Doctor Diller outlines the importance of watching for late effects of treatment for childhood cancer survivors. Doctor Diller describes late effects as the side effects of the cancer treatment that occurs well after the cancer has been cured. She says to think of them as “effecting parts of the body that were detrimentally effected by therapy” such as chemotherapy, surgery or radiation. Watch the video below to find out more. Cancer […]

  • Financial checkups after childhood cancer

    Childhood cancer survivors need financial checkups as adults. The US website Marketwatch explains that in addition to health checkups, cancer survivors will need financial checkups post treatment too. The article referenced a study published by St. Jude Children’s Research Hospital in New York City. The study included almost 3,000 long-term paediatric cancer survivors aged between 18 and 65. “More than half said they were worried about paying for care and one-third said finances kept them from seeking medical care. (They were, on average, 23 years from their diagnosis and all had been treated at St. Jude.)”     Beyond the impact that […]

  • Keeping your child healthy during cancer remission

    This factsheet from US website familydoctor.org offers some information and tips for parents when their child finishes treatment. Whether your child is in partial or complete remission, you may have questions like ‘what do I do next?’ and fears like ‘what if the cancer comes back?’ This article covers some topics including: Nutrition and exercise, Keeping records of your child’s treatment, and Late effects. To end this resources suggests Questions to ask your doctor such as: What kinds of symptoms should I look for that mean I should call you? What doctors should my child see now that the cancer is […]

  • How your general practice team can support you

    This fact sheet from the Australian Cancer Survivorship Centre (ACSC) offers information about involving your general practice team in your healthcare following cancer treatment. It offers some key insights and tips: • Your GP is the cornerstone of your healthcare. • Make a long appointment with your GP to develop an after treatment health plan. • Your GP and GPN are well placed to help you manage the effects of cancer treatment. • Your GP and GPN can support you to make healthy lifestyle choices. • Lifestyle changes may help reduce the risk of cancer coming back, and help you […]

  • Unravel Pediatric cancer … until there is a cure

    Unravel Pediatric Cancer is a US based not-for-profit organisation working to spread knowledge about the realities of childhood cancer. They raise funds to: support research that investigates the causes and mechanisms of paediatric cancer; develop more effective and less toxic treatments; and find a cure. Unravel has produced an infographic to articulate their mission and show some statistics about childhood cancer in the United States.    After her daughter was diagnosed with diffuse intrinsic pontine glioma (DIPG), Libby Kranz co-founded Unravel. DIPG is a type of brain cancer which doesn’t respond to chemotherapy and is terminal. She recalls: Her doctor […]

  • Looking after yourself during cancer

    This page from Redkite gives an overview of how to take care of yourself physically and emotionally during your cancer journey. A large part of dealing with cancer is learning how to take care of yourself so that you are better prepared for challenges, but also ready to enjoy good things that come your way. Redkite offers tips on: Self-care Looking after your body Looking after your mind Having fun and taking risks Redkite provides a range of support services for young people with cancer including practical tips, financial assistance, and professional counselling. Cancer Advisor has a range of resources […]

  • Kids Kicking Cancer: martial arts therapy

    Kids Kicking Cancer is a not-for-profit organisation that teaches the mind-body techniques of Martial Arts instruction, breath work and meditation to empower children beyond the pain and discomfort of disease. Kids Kicking Cancer now offers help and services to not only cancer patients, but any child in pain from a serious illness. They currently operate the Heroes’ Circle program in America, Canada, Israel and Italy and support ill children and their siblings aged 3-23 years old. Using martial arts therapy, Kids Kicking Cancer staff teaches ill children and their siblings to: Regain a sense of control over the chaos of their […]

  • Advice and strategies for life after cancer treatment 

    Life After Cancer Treatment — 5 Things to Know was published on the LIVESTRONG Foundation blog. After cancer treatment ends it is important to know that a survivors body and mind may have experienced a very difficult and life changing event. This webpage covers: cognitive changes your emotions physical effects eating well and exercise creating a survivorship care plan Cancer Advisor has a range of resources on life after cancer, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Tips for facing post-treatment side effects

    In this 2Survive blog post, childhood cancer survivor Ryan offers tips for facing post-treatment side effects including: Know Your Drugs Be Ready Follow Up Be A Jerk Cancer Advisor has a range of resources on life after cancer, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Leukaemia survivor ‘blows something up’

    Leukaemia survivor Declan, who is currently in remission after being diagnosed  in 2015, has made a special request to Make-A-Wish Australia. After surviving childhood cancer, Declan’s wish was to blow something up. The 12-year-old was allowed to spend the day with Australian Federal Police’s (AFP) Specialist Response Group at its Majura headquarters in Canberra. He had the opportunity to see his wish come true; blowing up walls, doors and even have his name spelled out by explosives on a special training ground. You can watch Declan’s experience in the video below. Cancer Advisor has a range of personal stories, but we’re always looking for […]

  • After Cancer: Tips to Get Your Child Back on Track

    Life after childhood cancer may look a little different. In this article, the Cleveland Clinic chats with pediatric oncologist Seth Rotz, MD who has come up with six tips to get your child back on track, including:  Use school and community resources to support learning and development Work with an ophthalmologist to watch for vision changes Monitor hearing during and after cancer therapy Work closely with your dentist Follow your doctor’s guidelines to watch for secondary cancers Teach your child to focus on healthy lifestyle choices Cancer Advisor has a range of resources on life after cancer, but we’re always looking for […]

  • ReCaPTure LiFe – online support program

    ReCaPTure LiFe (Resilience and Coping skills for young People To Live well Following cancer) is a new online support program for young cancer survivors aged 15-25. The program enables them to share their experiences with other young people and learn new ways to get back to ‘normal’ after cancer. The groups run online and include a six-week online group program (which works like Skype), with sessions lasting approximately 90 minutes led by a CanTeen counsellor. Cancer Advisor has a range of resources on support services, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Sibling support from CanTeen

    My brother or sister has cancer is a suite of information resources for young people who have a sibling with cancer published by CanTeen. This sibling support resources are aimed mostly at teenagers and young adults, so for supporting a younger sibling you may wish to check out these other resources on Cancer Advisor.  It can be really hard to ask for support. You might not be able to find the right words, feel embarrassed or scared of getting upset. Talking things through can be a big relief. It can help to put things into perspective and sort things out in your head. […]

  • PICS podcast about siblings of cancer patients

    Paediatric Integrated Cancer Service (PICS) have produced a 16-minute podcast about siblings of a cancer patient. This episode is one in a series called Life After Treatment. In episode 3 – a family therapist (Maria) and a mother (Bridget) talk about going through the cancer journey in regards to Noah who was born four months after his big brother Leo was diagnosed with cancer. The podcast also provides suggestions on how to manage emotions and other issues that parents and siblings might face. For further reading, Cancer Advisor has a range of resources on siblings. Or, if you have any questions that need […]

  • Easy ways to improve your vocabulary and reading

    St. Jude Hospital’s LIFE study staff have created a one-page tip sheet on easy ways to improve your vocabulary and reading after  childhood cancer. Before you go … If you’ve been affected by childhood or young adult cancer, please share your insights and knowledge to help other people facing cancer. Join the Cancer Advisor community and register now.

  • Free eBook for teenage and young adult cancer survivors

    Aftercure: A guide for teenage and young adult survivors of childhood cancer is 28-page booklet by the UK Children’s Cancer and Leukaemia Group. The eBook is aimed at young people who had treatment as a child. Topics include follow up and future care, education and jobs, travel and vaccination, and fertility and sexual function. Note: some themes explored in this booklet will be specific to a UK audience. Published: March 2017 Next Review: 2020 Before you go … If you’ve been affected by childhood or young adult cancer, please share your insights and knowledge to help other people facing cancer. Join the Cancer […]

  • Teen Girl Living With Cancer – Ellie’s Story

    Teen Girl Living with Cancer is a personal blog by childhood cancer advocate, Ellie. You can also follow her on YouTube, Instagram and Facebook. At 14 years old Ellie was diagnosed with a rare childhood cancer called Alveolar Rhabdomyosarcoma. “It totally flipped my life upside down but now I can use all the horrible experiences I had to inspire and advise you guys.” At the time of writing, her Instagram and Facebook pages were the most up-to-date. On her instagram she says: NED since 22/01/16. I’m in remission. Before you go … If you’ve been affected by childhood or young adult cancer, […]