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    From cancer patient to university graduate

    In this story published by UNSW, Adry Adwan talks about how he went from cancer patient to university graduate. Below he talks a bit about why he wrote this piece. When I was diagnosed with an aggressive form of testicular cancer at the age of 17, I believed that I would not be able to achieve my dream of going to university. I was in year 12 at the time of my diagnosis, working hard to pass the HSC. Like all my classmates, I was ready to reap the rewards of all of my hard work and begin the adventures Read more [...]

  • Tosh’s story: how he helped end his daughter’s cancer

    After more than two years of chemotherapy, Tosh Nagashima helped end his daughter’s cancer. Cancer Advisor called him to talk about his family’s experience. In March 2014 four-year-old Bella was diagnosed with high-risk Acute Lymphoblastic Leukaemia (ALL). After arriving at the Royal Children’s Hospital in Melbourne in an ambulance, Bella started chemotherapy immediately. During treatment, Bella’s father continued to work full-time and take care of their youngest daughter Olivia while his wife Vanie spent day and night in the hospital. “After work I would visit Bella in the hospital every day,” he explains. “It was hard for her younger sister Read more [...]

  • Childhood cancer survivor brings hope to cancer patients

    In this six-minute video we see how a childhood cancer survivor brings hope to young cancer patients. Georgia was diagnosed with a rare and aggressive form of leukaemia at just eight weeks old. She was also one the youngest Australians to receive a bone marrow transplant. Twenty years on, she has devoted her life to helping children with cancer as a camp leader. In this ABC video that featured on the 7:30 report, her family share their story with the ABC. Cancer Advisor has a range of personal stories, but we are always looking for more content. Register now to contribute content, Read more [...]

  • Celebrating oncology nurses

    When it comes to cancer treatment, oncology nurses who care for teenagers and children are an integral part to a treatment team. Nurses can also transform a hospital experience – they can become an advocate, a teacher, a healer and in some cases, even a friend. To celebrate paediatric and teenage oncology nurses, we’ve found some videos that highlight how nurses have impacted the lives of their patients. Watch the videos now and tell us in the comments which is your favourite. Please note: These videos were filmed in the US and the UK. However, we’d love to share stories and Read more [...]

  • Nerida’s story: Turning Brisbane gold for kids with cancer

    The 1st of September is our D-Day anniversary, so this year I decided to channel my energy into something positive. I turned Brisbane Gold. Brisbane City Hall, The Story Bridge and Victoria Bridge all shone gold for Childhood Cancer Awareness. This is how it happened: Receiving a diagnosis On the 1st September 2015 my Son Xavier was diagnosed with Stage III Embryonal Rhabdomyosarcoma of the bladder at just 23 months of age. We had to move to Brisbane from Townsville for treatment and as I knew very few people here, I started a Facebook support group page for the oncology Read more [...]

  • Cnected – Cancer app created by cancer survivor

    Hi, I’m Jack – the creator of the cancer app Cnected, I am 21 years old. In October 2017 I was diagnosed with a rare stage III cancer (undifferentiated carcinoma), and decided to set up an Instagram page to document my journey (@itsme_jmo). Following intense and aggressive chemo and radiotherapy for head and neck tumours at The Royal Marsden, in May of this year I was thankfully given a clean bill of health. Over the past few months, through my Instagram page, I connected with many cancer patients, survivors and family members of patients. I realised how powerful and beneficial social Read more [...]

  • Rhi’s story: adjusting to a new normal after cancer treatment

    My son Connor was diagnosed with cancer at three years old. Thankfully he is currently in remission. Now that I finally have spare moments to breathe and reflect upon the whole traumatic journey of childhood cancer I have to admit that one of the most difficult parts was coming home. When my son was diagnosed with stage IV neuroblastoma At the time of diagnosis we lived in Collinsville, a small mining community in rural North Queensland. Initially we were flown to Townsville hospital. After three days and much investigation we were transferred to Brisbane via Royal Flying Doctors. Our oncologist Read more [...]

  • 8 lessons in childhood cancer

    The Kids Cancer Project has published a personal story by Sarah Weir who offers her eight lessons in childhood cancer. She writes: “Life for our family changed forever in 2013 when our two-year-old baby girl was diagnosed with neuroblastoma. For four years, Evie Grace endured surgeries and seemingly endless treatment only to relapse four times before gaining her angel wings on 19 December 2017. Throughout our cancer journey, because my husband Josh and daughter Alicia shared it too, there were moments of extreme joy alongside the heart wrenching pain. Here are a few lessons I learned along the way.” Her lessons include: Read more [...]

  • Kids Kicking Cancer: martial arts therapy

    Kids Kicking Cancer is a not-for-profit organisation that teaches the mind-body techniques of Martial Arts instruction, breath work and meditation to empower children beyond the pain and discomfort of disease. Kids Kicking Cancer now offers help and services to not only cancer patients, but any child in pain from a serious illness. They currently operate the Heroes’ Circle program in America, Canada, Israel and Italy and support ill children and their siblings aged 3-23 years old. Using martial arts therapy, Kids Kicking Cancer staff teaches ill children and their siblings to: Regain a sense of control over the chaos of their Read more [...]

  • “TJ’s Cancer Journey” – A mum’s blog about her teenager

    TJ’s Cancer Journey is a blog about my 15-year-old son who was diagnosed with Hodgkin Lymphoma at the age of 14. I am documenting my son’s journey with cancer so that one day he can look back at it and remember everything he went through during this difficult time. Hopefully our experiences will be able to help others who are going through similar. It is a journal of his cancer experience so far and includes: how he felt when he was diagnosed; how cancer has affected him and those around him; what treatment he is receiving; what tests he has completed; Read more [...]

  • Weightlifting at nine year’s old – Ryan’s story

    OnUS blog 2Surviveonline a cancer survivor called Ryan discusses how weightlifting at nine year’s old helped him through cancer. He says, “When I was a kid, I was extremely small from cancer treatment. Chemotherapy made it where I could not really eat so well (shocker). Then there was that whole puking thing that I’m sure many of you survivors know about. But enough of the whining.” Ryan’s grandfather said he would give him a dollar for every pound he put on. Go to his blog to find out more. Cancer Advisor has a range of personal stories, but we’re always looking Read more [...]

  • Relapse after cancer as a teen or young adult

    Sometimes, despite the best care and significant progress made in treatment, cancer comes back. When this happens it is called a recurrence or relapse. The likely relapse occurs is that a few of the original cancer cells survived the initial treatment. Sometimes, this is because cancer cells spread to other parts of the body and were too small to be detected during the follow-up immediately after treatment. There can be a lot to manage if you experience relapse after cancer as a teen or young adult. This factsheet by Redkite offers an insight into some of the questions you might be asking yourself Read more [...]

  • The finish line after leukaemia treatment

    My daughter Ruby recently completed her two years of treatment for Leukaemia. This story, that was published on Mamamia, offers some top tips from Ruby about what she has learned (she is only 6) and what I, as a cancer mum, have discovered. My advice for any mum in the same position Allow yourself to feel. If you feel sad, then cry. If you are angry, then scream. If you are happy, then laugh. Don’t pretend you are okay when you are not. Don’t be too proud to ask for help. We all need help sometimes, and there are so many people Read more [...]

  • “I draw childhood cancer” – Cartoons by Angus

    I Draw Childhood Cancer is a Facebook page by talented artist Angus Olsen. His daughter Jane was diagnosed with Embryonic Rhabdomyosarcoma at 3 years old. Ever since he has created various works communicating the experience of having a child with cancer. He also draws other children from all across the world in ways that show their strength and beauty. On his Facebook page he writes: In 2016 our 2yo daughter was diagnosed with RMS cancer. In the nightmare I drew and it helped me. Now I draw childhood cancer and it somehow helps others. Cancer Advisor has a range of personal Read more [...]

  • Breast cancer anxiety – Annie’s story

    On the Live Better With Cancer blog, Annie Belasco shares her experience of anxiety following her breast cancer diagnosis – aged 25. She starts with, “I didn’t live well. I boozed, I smoked, and I didn’t sleep. I worked hard, overrated my love life and underrated my health. I didn’t think about it. And so, my unhealthy lifestyle set me up for the most difficult recovery of my life. To fight for my life.” To find out more about her story, go to her blog post. Cancer Advisor has a range of personal stories, but we are always looking for more Read more [...]

  • Ewing’s sarcoma at 11 — Iain’s story

    Iain was diagnosed with ewing’s sarcoma in November 2007, at the age of 11. He shares his diagnosis and treatment journey for the UK’s Ewing’s Sarcoma Research Trust. Before he was diagnosed with ewing’s sarcoma, Iain was active, sporty and enjoyed being a goal keeper. “For about a year I had a sore right thigh – after a couple of days the pain always went away and then would come back a few months later,” he says on the website. Originally the doctors thought the pain was from an injury, but eventually they sent him to a specialist. “An x-ray Read more [...]

  • Synovial sarcoma at 16 — CC’s story

    Redkite and jimmyteens.tv have created a video interview with 19-year-old Charisse aka CC who was diagnosed with a rare form of tissue cancer called synovial sarcoma at 16. In the video she says “I was like an average 16 year old and like nothing better than hanging out with my friends. I was in Year 11 at school and especially enjoyed subjects such as maths and performance.” During the film, CC tells us that synovial sarcoma is a rare form of soft tissue sarcoma and is common in adolescents. It can also be misdiagnosed as a growing pains. Throughout the Read more [...]

  • Osteosarcoma at 11 — Rhiannon’s story

    Redkite and jimmyteens.tv have created a video about 15-year-old Rhiannon, who was diagnosed with osteosarcoma at 11. In the video she says at first she was diagnosed with ewing’s sarcoma but after a biopsy she was diagnosed with osteosarcoma in the right arm. Her arm was taken out and radiated before being put back in with a plate. Find out more about her experiences in the video below: Cancer Advisor has a range of personal stories, but we are always looking for more content. Please join our community to leave a comment. You can also share your personal story or recommend a resource to help other Read more [...]

  • Jodi’s story – relocating for cancer treatment

    For many people, a cancer diagnosis also means relocating for treatment. Jodi was living with her son Trystan and her four other children in Alberton, regional Tasmania when he was diagnosed with acute lymphoblastic leukaemia. Trystan was only three at the time of his diagnosis. After a year of intensive treatment Trystan still hadn’t reached remission. Jodi was separated from her other children and had to stay in a flat in Hobart. For 12 months, Jodi was running two different households across the state. She shares her story of diagnosis, treatment and remission in this Redkite video series below. Diagnosis and Read more [...]