•  

    Ben’s story: ‘Cancer has taught me a lot’

    Diagnosis & treatment After having a sore on his neck for a few weeks Ben decided to make an appointment with his local GP in Perth. Although Ben was more preoccupied about the sore, after hearing about Ben’s history of headaches the doctor insisted on getting tests done. A few weeks later, the 23-year-old was told he had a benign brain tumour and needed surgery. However, after testing the biopsy the tumour turned out to be a malignant four centimetre mass. It was classified as stage 2 with characteristics of stage 3 astrocytoma glioma. The mass was on the right Read more [...]

  • Maddy Ritchie: I Don’t Know How She Does It

    Being 17 is complicated enough. Being told you have a rare pelvic tumour can really turn your world upside down. Meet Maddy: she’s now in her early 20s, two years cancer-free and a passionate volunteer with cancer charities. She speaks candidly about treatment, fertility, spirituality and how she got through her experience. From MamaMia’s ‘I Don’t Know How She Does It’ podcast series.

  • Coping with cancer at university

    In this article on UK news website The Guardian, Robin Cannone shares his personal experience of university as a young person with cancer. Cannone was diagnosed with a type of lymphoma, the most common cancers among 15- to 24-year-olds, representing 21% of diagnoses in the UK. I was looking through my hospital room window and imagining what I’d be doing if I hadn’t been diagnosed with cancer. I wanted to be going clubbing and worrying about university deadlines like a normal 20-year-old – not stuck indoors with a syringe in my arm. -Robin Cannone, young person with cancer Cannone acknowledges the important part that Read more [...]

  • Studies prove lack of fertility information and support for young people

    Wiley Newsroom reports that 23 studies have found a lack of fertility information and support for young people. While many clinicians know of the risk to their patients’ fertility from cancer treatment, they are not having the appropriate discussions and referrals to provide adequate support to them. The report also mentions: “[S]ome oncology clinicians may lack appropriate fertility knowledge and be unsure whose role it is to provide fertility support.” Cancer Advisor has a range of resources on fertility, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource.

  • Looking after yourself during cancer

    This page from Redkite gives an overview of how to take care of yourself physically and emotionally during your cancer journey. A large part of dealing with cancer is learning how to take care of yourself so that you are better prepared for challenges, but also ready to enjoy good things that come your way. Redkite offers tips on: Self-care Looking after your body Looking after your mind Having fun and taking risks Redkite provides a range of support services for young people with cancer including practical tips, financial assistance, and professional counselling. Cancer Advisor has a range of resources Read more [...]

  • Sharing my cancer story at Sydney Colour Ball 2018

    Earlier this month, I had the pleasure of sharing my cancer story at Sydney Colour Ball 2018 at Sofitel Sydney Darling Harbour. The Sydney Colour Ball is an annual, cocktail-style event that raises important funds for Redkite so they can reach even more families affected by cancer and provide them with its essential services. Every year, guests are encouraged to dress up in the colour theme – and this year’s colour was ultraviolet! The fun, party-like atmosphere of the Sydney Colour Ball certainly helped remove any nerves I had about sharing my story. There were lots of good food, drinks Read more [...]

  • Battle Weapons: A coping guide for young people with cancer

    Hi, my name is Nell and I’m the author of Battle Weapons: A coping guide for young people with cancer. I’m also a nurse and a cancer survivor. In high school, when we started the discussion about our future, my career advisor suggested nursing. This really appealed to me; to serve and support people at their most vulnerable is a great honour and privilege. Nursing is very diverse and I wasn’t sure for a long time where I wanted to take it, until I was diagnosed with cancer. I know my life’s purpose is to help those with cancer, particularly young people. Read more [...]

  • “Cancer helped form the person I am” – Sam’s story

    For many years, Sam Alderton-Johnson (30) felt shame and despair when he recalled his memories of suffering from leukaemia as a young boy of 14. “When you’re younger you have this warped idea of what masculinity is,” Sam explains. “I thought that being that very sick kid was a terrible time in my life that I never wanted to engage with, that was until I got older and I realised it had helped form the person I am.” As a teenager, Sam enjoyed sports immensely, however, his life was turned upside down with his diagnosis of leukaemia. He remembers the Read more [...]

  • Cancer treatment for teens and young adults

    This factsheet from Redkite gives an overview on cancer treatment for teens and young adults including: types of cancer treatment, complementary therapy and cancer, clinical trials, side effects, and sticking with treatment. Cancer Advisor has a range of resources on cancer treatment, but we’re always looking for more content. Leave a comment below, share your own story or recommend a resource. Join our community Cancer Advisor is an online platform with a wide range of cancer advice and knowledge. We provide information for families of children and young people with cancer. You’ll be directed to external websites and sources featuring reliable information Read more [...]

  • Breast cancer anxiety – Annie’s story

    On the Live Better With Cancer blog, Annie Belasco shares her experience of anxiety following her breast cancer diagnosis – aged 25. She starts with, “I didn’t live well. I boozed, I smoked, and I didn’t sleep. I worked hard, overrated my love life and underrated my health. I didn’t think about it. And so, my unhealthy lifestyle set me up for the most difficult recovery of my life. To fight for my life.” To find out more about her story, go to her blog post. Cancer Advisor has a range of personal stories, but we are always looking for more Read more [...]

  • Managing pain during cancer

    This content is not a substitute for medical advice. Please consult with your doctor or other health professional to make sure this information is right for you. US website Cancer.Net has a range of resources for young adults with cancer, including pain management information. Many patients and survivors experience pain during and after cancer treatment. It may help to know that cancer pain can be treated successfully for most patients. But it is important to focus on managing pain during all phases of cancer treatment and into survivorship. This website offers information on the following topics: Pain: Causes and Diagnosis Read more [...]

  • Burkitt’s lymphoma at 15 — Cameron’s story

    Redkite and jimmyteens.tv have created a video interview with 20-year-old Cameron who has been in remission from Burkitt’s lymphoma for the last five years. Cameron was diagnosed at 15. For two weeks he was feeling unwell with headaches, nausea, cold sweats and weight gain before he went to the doctor. “The doctor said my white cell count was pretty horrible,” he says in the video. He went to his local hospital in Redlands. “They had a fair idea it was leukaemia but they wouldn’t tell me at first, they thought I would have a bad reaction to it.” After going Read more [...]

  • Chemotherapy for medulloblastoma — Brent’s story

    Redkite and jimmyteens.tv have created a video interview with Brent who has just started chemotherapy after having radiotherapy and surgery for medulloblastoma. Brent talks about his home town Cunnamulla, how he was diagnosed with cancer after experiencing headaches, his stem cell transplant and how life is back home being a sheep shearer. Brent is having treatment 12 hours drive from his hometown. He had 32 sessions of radiotherapy, before starting chemotherapy. “My symptoms were that I was getting real massive headaches.” He said he saw the doctor who gave him medication for a chest infection, but he got sick that Read more [...]

  • Going through chemotherapy — Jana’s story

    Redkite and jimmyteens.tv have created a video about 21-year-old Jana experiences of going through chemotherapy and the cancer treatment process. “We thought it would be a really good idea to film it because having those memories of the most challenging times of your life, helps you remember what it felt like,” she says. Jana also talks about how challenging she has found finishing treatment and getting back to normal but how the support from her family gave her so much strength. Cancer Advisor has a range of personal stories, but we are always looking for more content. Please join our community to Read more [...]